Table 1.
Categories and codes specific to patient experience of the radiotherapy journey.
Categories identified from user discussions | Sub Categories |
---|---|
Information needs | Knowledge of Treatment Mis-information Timing of Information Preconceptions of RT |
Exposure | Issues of Modesty Wearing a gown in a public place |
Emotional experience | Feeling embarrassed |
Interactions with HCPs | Staff attitudes Feeling a burden |
Finding your voice | Being listened to Disempowered |
Technology focused care | Impersonal Systems and processes-including having confidence in staff and the process |
Choice | Communication issues Feeling oppressed Having to have tattoos |
Fear | Fear about treatment accuracy, minimising errors Feeling frightened |
The waiting room experience | Inappropriate entertainment |
Getting to radiotherapy | Physically getting there to the radiotherapy centre The emotional journey-what has come before (including chemotherapy, surgery the end of a long process) |
Impact of side effects | Skin reactions Finding a comfortable bra to wear during the radiotherapy period |
The changed self | Lost self confidence Change to personal image/body image Wanting to feel normal |