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. 2021 May;27(2):352–359. doi: 10.1016/j.radi.2020.09.011

Table 1.

Categories and codes specific to patient experience of the radiotherapy journey.

Categories identified from user discussions Sub Categories
Information needs Knowledge of Treatment
Mis-information
Timing of Information
Preconceptions of RT
Exposure Issues of Modesty
Wearing a gown in a public place
Emotional experience Feeling embarrassed
Interactions with HCPs Staff attitudes
Feeling a burden
Finding your voice Being listened to Disempowered
Technology focused care Impersonal
Systems and processes-including having confidence in staff and the process
Choice Communication issues
Feeling oppressed
Having to have tattoos
Fear Fear about treatment accuracy, minimising errors
Feeling frightened
The waiting room experience Inappropriate entertainment
Getting to radiotherapy Physically getting there to the radiotherapy centre
The emotional journey-what has come before (including chemotherapy, surgery the end of a long process)
Impact of side effects Skin reactions
Finding a comfortable bra to wear during the radiotherapy period
The changed self Lost self confidence
Change to personal image/body image
Wanting to feel normal