Table 1.
Family Caregiver and Child Characteristics
| Caregiver Characteristics | N = 136 (%) |
|---|---|
| Female | 127 (93.4) |
| Relationship to child | |
| Parent | 124 (91.2) |
| Foster parent | 2 (1.5) |
| Grandparent/relative | 10 (7.3) |
| Age | |
| 18–34 | 44 (32.4) |
| 35–54 | 80 (58.8) |
| ≥55 | 12 (8.8) |
| Race/ethnicity | |
| White, non-Hispanic | 116 (85.3) |
| Black, non-Hispanic | 11 (8.1) |
| Hispanic/Latino | 1 (0.7) |
| Other | 8 (5.5) |
| Marital status | |
| Married | 80 (58.8) |
| Nonmarried, living with partner | 15 (11.0) |
| Single | 41 (30.1) |
| Education level | |
| Less than high school | 10 (7.4) |
| High school or equivalent | 26 (19.2) |
| Some college | 48 (35.3) |
| College or more | 52 (38.2) |
| Home ZIP code median income | |
| <100%FPL | 3 (2.2) |
| 100%−199%FPL | 55 (40.4) |
| 200%−399% FPL | 70 (51.5) |
| ≥400% FPL | 8 (5.9) |
| Child Characteristics | N = 136 (%) |
| Age | |
| 1–5 | 63 (46.3) |
| 6–11 | 32 (23.5) |
| 12–17 | 33 (24.3) |
| ≥18 | 8 (5.9) |
| Male | 78 (57.4) |
| Medical technology | 106 (77.9) |
| Chronic conditions | |
| Neurologic/neuromuscular | 125 (91.9) |
| Cardiovascular | 42 (30.9) |
| Respiratory | 90 (66.2) |
| Renal/genitourinary | 53 (39.0) |
| Gastrointestinal | 119 (87.5) |
| Malignancy | 3 (2.2) |
| Neonatal/prematurity | 22 (16.2) |
| Transplant | 4 (2.9) |
| Hematologic/immunologic | 33 (24.3) |
| Metabolic | 55 (40.4) |
| Congenital/genetic | 97 (71.3) |
FPL indicates 2017 Federal Poverty Level (for 4-member household).