Table 1.

Demographic characteristics of participants

Patients
Female, n (%)	11/20 (55%)
Age at time of interview (yrs), median (range)	13.5 (9.0–17.0)
Transplant type, n (%)
Heart	6 (30%)
Lung	1 (5%)
Liver	5 (25%)
Kidney	7 (35%)
Multi-organ	1 (5%)
Race/ethnicity, n (%)
White	9 (45%)
Indigenous	4 (20%)
South Asian	2 (10%)
Black	1 (5%)
Filipino	1 (5%)
Somali	1 (5%)
South African	1 (5%)
Prefer not to say	1 (5%)

Caregivers
Female, n (%)	18/22 (82%)
Age at time of interview (yrs), median (range)	47.0 (31.0–64.0)
Transplant type (patient), n (%)
Heart	7 (31.8%)
Lung	1 (4.5%)
Liver	6 (27.1%)
Kidney	7 (31.8%)
Multi-organ	1 (4.5%)
Relationship to patient, n (%)
Parent	20 (91%)
Grandparent	1 (4.5%)
Legal guardian	1 (4.5%)
Marital status, n (%)
Married/common law	18(81.2%)
Separated/divorced	2 (9.1%)
Single	2 (9.1%)
Annual household income range, n (%)
< 20,000	2 (9.1%)
20,000–39,000	1 (4.5%)
40,000–49,000	3 (13.6%)
60,000–69,000	4 (18.2%)
80,000–89,000	3 (13.6%)
> 100,000	7 (31.8%)
Prefer not to say	2 (9.1%)
Race/ethnicity, n (%)
White	13 (59%)
Indigenous	3 (13.6%)
Filipino	2 (9.1%)
South Asian	2 (9.1%)
African	1 (4.5%)
Prefer not to say	1 (4.5%)

Healthcare practitioners
Female, n (%)	16/21 (76%)
Years in transplantation at current institution, median (range)	13.0 (2.0–22.0)
Healthcare practitioner type, n (%)
Physician	7 (34%)
Nurse practitioner	3 (14%)
Nurse	2 (9%)
Psychologist	2 (9%)
Social worker	2 (9%)
Dietician	1 (5%)
Occupational therapist	1 (5%)
Patient care coordinator	1 (5%)
Pharmacist	1 (5%)
Physical therapist	1 (5%)
Race/ethnicity, n (%)
White	15 (72%)
South Asian	2 (9%)
Asian	1 (5%)
Black	1 (5%)
Prefer not to say	2 (9%)