Table 1.
Characteristics of the survey’s participants.
| Survey Participants Who Provided Information | All (n = 111) | Patient Responses (n = 58) | Caregiver Responses (n = 53) | p Value |
|---|---|---|---|---|
| Percentage from all respondents | 100 | 52.25 | 47.75 | |
| Male/female (n, %) | 44 (39.64)/67 (60.36) | 13 (22.41)/45 (77.59) | 31 (58.49)/22 (41.51) | <0.0001 ** |
| n, % or median, range | n, % or median, range | n, % or median, range | ||
| Age (years) | 25 (1–70) | 35 (19–60) | 8 (1–70) † | <0.0001 ** |
| Seizure type | 0.005 * | |||
| Focal | 49 (44.14) | 33 (56.9) | 16 (30.19) | |
| Generalized (“whole-body” seizures) | 37 (33.33) | 18 (31.03) | 19 (35.85) | |
| Generalized (absence or myoclonic seizures) | 10 (9.01) | 3 (5.17) | 7 (13.21) | |
| Other | 10 (9.01) | 1 (1.72) | 9 (16.98) | |
| Unknown | 5 (4.5) | 3 (5.17) | 2 (3.77) | |
| Current seizure frequency (December 2020) | 0.261 | |||
| Several times per day | 14 (12.61) | 2 (3.45) | 12 (22.64) | |
| Several times per week | 18 (16.22) | 9 (15.52) | 9 (16.98) | |
| Several times per month | 25 (22.52) | 20 (34.48) | 5 (9.43) | |
| Several times per year | 22 (19.82) | 10 (17.24) | 12 (22.64) | |
| Once per year | 7 (6.31) | 4 (6.90) | 3 (5.66) | |
| Less than once every year | 20 (18.02) | 10 (17.24) | 10 (18.87) | |
| No seizures for 5 years or longer | 5 (4.50) | 3 (5.17) | 2 (3.77) | |
| Seizure frequency during the summer of 2020 | 0.400 | |||
| Several times per day | 17 (15.32) | 5 (8.62) | 12 (22.64) | |
| Several times per week | 14 (12.61) | 6 (10.34) | 8 (15.09) | |
| Several times per month | 27 (24.32) | 21 (36.21) | 6 (11.32) | |
| Once per month | 6 (5.41) | 2 (3.45) | 4 (7.55) | |
| Once | 13 (11.71) | 6 (10.34) | 7 (13.21) | |
| None | 34 (30.63) | 18 (31.03) | 16 (30.19) |
n—number of patients, †—the six adults represented by their caregivers were 18, 25, 27 (three patients), and 70 years old, *—p < 0.05, **—p < 0.0001.