Table 1.

Demographics

Respondents	N = 511
Gender %(n)
Male	5.5 (28)
Female	93.9 (480)
Non-binary	0.2 (1)
Prefer not to identify	0.4 (2)
Age %(n)
18–29 years	9.8 (50)
30–44 years	31.3 (160)
45–54 years	21.9 (112)
55–64 years	23.1 (118)
65–74 years	12.3 (63)
75 years and older	1.6 (8)
Race/ethnicity %(n)
White/Caucasian	91.2 (466)
Hispanic/Latino	1.6 (8)
Black/African American	0.6 (3)
Asian	0.4 (2)
Native American/Alaskan Native	0.4 (2)
Other/multiple ethnicities	5.9 (30)
Type of PID %(n)
CVID	79.8 (408)
SAD	4.9 (25)
SCID	0.8 (4)
IgG subclass deficiency	7.4 (38)
Agammaglobulinemia	1.0 (5)
Selective IgA deficiency	1.0 (5)
Hyper IgM deficiency	0.6 (3)
CGD	0.2 (1)
Complement deficiency	0.4 (2)
Other/unsure	3.9 (20)

CVID =  common variable immune deficiency; SAD = specific antibody deficiency; SCID = severe combined immune deficiency; CGD =  chronic granulomatous disease