Table 1.

What outcomes do MBD patients consider important?

Domain	Example
Physical	Pain, fatigue, nausea, energy, loss of appetite67
Psychological	Depression, ability to cope, health perception68
Function/mobility	Ambulation, continence21
Social	Loneliness, sexual function
Financial	Treatment expenses, travelling to appointments
Treatment-related	Treatment burden (e.g. frequency of visits, number of blood draws etc), skeletal-related events (SREs, e.g. fractures, hypercalcaemia)20

Adapted from Mougalian et al.