Table 1.
Characteristics of participants in the round two survey
| Carer stakeholder group (n = 36) | Professional stakeholder groups (n = 39) | |
|---|---|---|
| n (%) | n (%) | |
| Gender (male) | 12 (33.3%) | 10 (25.6%) |
| Age (years) | ||
| 18–29 | 1 (2.8%) | 8 (20.5%) |
| 30–39 | 0 (0%) | 9 (23.1%) |
| 40–49 | 2 (5.6%) | 6 (15.4%) |
| 50–59 | 12 (33.3%) | 12 (30.8%) |
| 60–69 | 9 (25%) | 3 (7.7%) |
| 70–79 | 10 (27.8%) | 1 (2.6%) |
| Supporting people in the following stages of dementia progression | ||
| Mild to moderate | 12 (33.3%) | 8 (20.5%) |
| Moderate to severe | 13 (36.1%) | 7 (17.9%) |
| Severe | 0 (0%) | 2 (5.1%) |
| All stages | 11 (30.6) | 26 (66.7%) |
| Not known | 2 (5.6%) | 0 (0%) |
| Supporting activity in the following settings | ||
| Community | 34 (94.4%) | 35 (89.7%) |
| Sheltered accommodation | 3 (8.3%) | 8 (20.5%) |
| Care or nursing home | 12 (33.3%) | 22 (56.4%) |
| Hospital | 2 (5.6%) | 24 (61.5%) |
| Country | ||
| England | 36 (100%) | 35 (89.7%) |
| Wales | 0 (0%) | 1 (2.6%) |
| France | 0 (0%) | 1 (2.6%) |
| Portugal | 0 (0%) | 1 (2.6%) |
| Brazil | 0 (0%) | 1 (2.6%) |
| Singapore | 0 (0%) | 1 (2.6%) |
| Relationship to the person living with dementia (one carer cared for more than one person living with dementia) | ||
| Spouse/partner | 14 (38.9%) | Not applicable |
| Adult children | 17 (47.2%) | Not applicable |
| Children in law | 4 (11.1%) | Not applicable |
| Grandchildren | 1 (2.8%) | Not applicable |
| Friends | 1 (2.8%) | Not applicable |
| Professional background (some professionals had a dual role, e.g. physiotherapist and researcher): | ||
| Physiotherapists | Not applicable | 14 (35.9%) |
| Researchers | Not applicable | 8 (20.5%) |
| Members of volunteer organisations | Not applicable | 7 (17.9%) |
| Occupational therapists | Not applicable | 6 (15.4%) |
| Rehabilitation assistants | Not applicable | 4 (10.3%) |
| Social workers | Not applicable | 1 (2.6%) |
| Nurses | Not applicable | 1 (2.6%) |
| Health care support workers | Not applicable | 1 (2.6%) |