Table 1.
Summary of caregiver demographics and caregiving characteristics.
| Variables | Participants (excluding missing data) | |
| Age (years), n (%) | ||
| ≤40 years | 479 (50.7) | |
| >40 years | 465 (49.3) | |
| Gender, n (%) | ||
| Male | 324 (34.2) | |
| Female | 620 (65.7) | |
| Income, n (%) | ||
| ≤$50,000 | 249 (28.5) | |
| $50,001-$99,999 | 373 (42.8) | |
| ≥$100,000 | 250 (28.7) | |
| Race, n (%) | ||
| White | 746 (79.4) | |
| Othera | 194 (20.6) | |
| Ethnicity, n (%) | ||
| Hispanic | 158 (16.8) | |
| Non-Hispanic | 783 (83.2) | |
| Marital status, n (%) | ||
| Married | 823 (87.3) | |
| Unmarried | 120 (12.7) | |
| Employment status, n (%) | ||
| Employed | 743 (79.0) | |
| Unemployed | 197 (21.0) | |
| Education, n (%) | ||
| Some college or less | 280 (29.6) | |
| College degree or more | 665 (70.4) | |
| Caregiver relation to recipient, n (%) | ||
| Parent | 311 (32.9) | |
| Child | 274 (28.9) | |
| Spouse | 257 (27.1) | |
| Other | 104 (11.1) | |
| Donor relationship, n (%) | ||
| Related donor | 476 (51.0) | |
| Unrelated donor | 328 (35.1) | |
| Patient themselves | 130 (13.9) | |
| Caregiver supporting another individual, n (%) | ||
| Yes | 644 (68.1) | |
| No | 301 (31.9) | |
| Care duration, n (%) | ||
| ≤6 months | 443 (46.9) | |
| >6 months | 501 (53.1) | |
| Care burden, n (%) | ||
| ≤20 hours/week | 343 (36.4) | |
| 20-40 hours/week | 376 (39.9) | |
| >40 hours/week | 224 (23.7) | |
| Caregiver lives with recipient, n (%) | ||
| Yes | 786 (83.4) | |
| No | 156 (16.6) | |
| Caregiver medical conditions, mean (SD) | 1.2 (1.3) | |
aThe race variable was a multiple choice question in our survey; however, since the majority of respondents were White, during analysis, we used only dummy code White/non-White.