Table 1.
Life Course Concepts | Definition of Life Course Concept applied to Endometriosis | Example Interview Questions |
---|---|---|
Location in Time and Space | Culture and context (including gender, SES and race) impacting women’s symptom recognition, assessment and management and help-seeking. | • Tell me when you noticed the first sign that something might be different or wrong. • What was the first time you remember anyone talking to you about your periods or your female health? • Were you aware of others experiencing similar symptoms? • Did you talk to anyone about your early symptoms and what do you remember them saying about your symptoms or how you should manage them? |
Linked Lives | The interaction of women with others and socialization influencing their symptom recognition, assessment and management and help-seeking. | • How did others influence the way you assessed your symptoms? • Who was most influential to how you saw your symptoms? • Have your symptoms had an effect on personal relationships? |
Human Agency | The goals of the individual and the effect on their decision-making and life pursuits as they relate to their symptom recognition, assessment and management and help-seeking. | Think about what you wanted for yourself as a child, teenager, and adult. • How did your symptoms impact your goals for your life? • How did your goals impact what you did about your symptoms? • How did your goals factor into whether you went to see a doctor about your symptoms? |
Time of their Lives | Choices made in their lives regarding symptom recognition, assessment, management and help-seeking are influenced by the time in which they live and the timing of events in their lives as they relate to their goals. | • Tell me how your symptoms have changed over time. • How has the way you manage your symptoms changed throughout your life? • What did you think about the timing of your diagnosis and the amount of time it took to get a diagnosis? |