| Self-fulfilment |
These individuals are motivated to find purpose; to do something meaningful; and, to establish productive and rewarding connections. |
All 5 patient partners shared being motivated to participate in a project that was rewarding and that they could developing connections with other individuals interested in similar things. |
| Improving Healthcare |
These individuals are motivated to make healthcare better; either because of a good/or bad experience themselves or want the healthcare system to perform to the best of its ability. |
Two individuals were motivated by the desire to improve the healthcare system and to advocate for other patients, so they did not have to go through what they had experienced. |
| Compensation |
These individuals need to fulfill a financial need (removing barriers to participation); and/or a need to be recognized by others (being paid is an acknowledgement of the patient/family member’s contribution as a partner). |
Three individuals were motivated to be seen as an equal player and valued for the perspectives and ideas they brought to the project. |
| Influence |
These individuals need to see (or feel) how they impact decisions; feeling heard; and/or, considered as a “partner.” |
Two individuals were motivated to be involved in projects as an equal player and valued for their perspectives. |
| Learning New Things |
These individuals are motivated by the need to be involved in a novel opportunity; curiosity; and self-improvement. |
Two individuals were motivated to be involved in projects that provided an opportunity to learn new things. |
| Conditional |
Not like other motivations, these are situation dependent; enhances the choice, to participate or not, by increasing the perceived value to the individual. |
Two individuals declared that they chose to participate in the project because the opportunity was flexible |
| Perks |
The symbolic meaning (and prestige) of being a patient advisor and member of the team; Realized when individuals are asked to attend conferences and events on behalf of the organizations and further reinforced when they are supported financially and not out of pocket. |
Four individuals indicated they appreciated that there would be opportunities to present the findings from the project at conferences and that their expenses would be covered. |
