TABLE 5.

Social interaction and community engagement

Factors	Examples
Social supports	Without my family, I think I’d be very alone on it. I sometimes will get a little tired of them always reminding me about stuff, but I know that they only do it because they want me to know that it’s important and they want to remind me how important it all is. It does feel great having all the support.—T3
	When a child is diagnosed with kidney failure, I mean it doesn’t just affect that child. It affects the parents, the siblings, everybody. It doesn’t just… It’s not just his life unless he was an only child, but it would still be his parents. Involved in that. We have a whole group and we have four, and a grandchild…So, yeah it’s just a family thing.—P3
	Next to the eating area is our computer desk. There’s a lot that happens there. Homework, family meals. I would say we’re together the most in that area of the house. And there’s accountability with that, too, ‘cause everyone knows where her pillbox is and it’s in an area where we are a frequent team, so other people can look at it and see. It’s not tucked away somewhere. It’s where you can see the pills are still in there or not. (Figure 4)—P8
	Well, when I was in the hospital I didn’t get to see my sister that much…She got the least amount of time with mom and dad. I feel kind of bad that she didn’t really get to see me when I was a baby. [She felt] pretty left out and excluded.—T14
	Just, you know, [people] kind of being too tender around me and not knowing what to say or how to act. And I could tell, I mean, I could tell when someone was acting different to me…I had siblings and close, close family friends. Like they’re my second parents and you know, and they were very supportive of me. So it’s not like I didn’t feel supported, but I felt almost too supported, if that makes sense, Which isn’t anyone’s fault. It’s just how I reacted at the time. And I was growing up with that too. And I was kind of figuring out my place in the world and where I stand and who I am.—T13.2