Table 2.
Participant demographics.
| Professional roles of participants | Number of participants, n (%) | Answered questions on adult care only, n (%) | Answered questions on child/adolescent care only, n (%) | Answered questions on adult care and child/adolescent care, n (%) |
|---|---|---|---|---|
| Consultant haematologist | 12 (29.3) | 7 (58.3) | 1 (8.3) | 4 (33.3) |
| Consultant paediatric haematologist | 4 (9.8) | 0 (0.0) | 4 (100.0) | 0 (0.0) |
| Haemophilia nurse | 13 (31.7) | 4 (30.8) | 7 (53.8) | 2 (15.4) |
| Haemophilia physiotherapist | 10 (24.4) | 4 (40.0) | 4 (40.0) | 2 (20.0) |
| Othera | 2 (4.9) | 2 (100.0) | 0 (0.0) | 0 (0.0) |
| Number of haemophilia patients with inhibitors participants were currently treating/had treated in the past 5 yearsb | Number of participants, n (%) | |||
| 0 Inhibitor patients | 0 (0.0) | |||
| 1–2 Inhibitor patients | 8 (19.5) | |||
| 3–5 Inhibitor patients | 16 (39.0) | |||
| >5 Inhibitor patients | 17 (41.5) | |||
| Do not wish to answer | 0 (0.0) | |||
| Location of institutions to which participants were affiliated | Number of participants, n (%) | |||
| London | 9 (22.0) | |||
| North West of England | 4 (9.8) | |||
| Scotland | 3 (7.3) | |||
| South East of England | 3 (7.3) | |||
| South West of England | 7 (17.1) | |||
| West Midlands | 4 (9.8) | |||
| Yorkshire | 3 (7.3) | |||
| Do not wish to answer | 0 (0.0) | |||
| Other | 8 (19.5) | |||
Demographics of participants that responded to the Round 1 questionnaire.
a
Other roles: n = 1 Haemophilia Research Nurse; n = 1 Associate Specialist Haematology.
b
All respondents were required to have experience of treating ⩾1 haemophilia patient with inhibitors; any individuals without experience, or who chose not to answer this question, were excluded from the Delphi study.