Table 1.
Patient Demographics
| Total (n=16) | Online Survey (n=93) | |
|---|---|---|
| Age, mean (range) | 61 (48–82) | 44 (23–70) |
| Age at diagnose, mean (range) | 42 (29–70) | 35 (15–64) |
| Gender, n (%)a | ||
| Male | 3 (19) | 22 (24) |
| Female | 13 (81) | 70 (75) |
| MS Typeb | ||
| RRMS | 9 (56) | 72 (77) |
| PPMS | 2 (13) | 11 (12) |
| SPMS | 4 (25) | 9 (10) |
| Disease severity, n (%)c | ||
| Mild | 1 (6) | 19 (20) |
| Moderate | 8 (50) | 20 (22) |
| Severe | 4 (25) | 4 (4) |
| Unknown | 3 (19) | 33 (18) |
| Treatment, n (%) | ||
| Treatment naïve | 4 (25) | 10 (11) |
| Treatment experienced, but not currently on DMTd | 9 (56) | 20 (22) |
| On 1st line DMT | 2 (13) | 17 (18) |
| On 2nd line DMT | 1 (6) | 46 (50) |
| Marital status, n (%) | ||
| Single | 19 (20) | |
| Partnered | 1 (6) | 23 (25) |
| Married | 12 (75) | 44 (47) |
| Divorced | 1 (6) | 5 (5) |
| Widowed | 2 (13) | 2 (2) |
| Education, n (%) | ||
| Primary/secondary education | 7 (44) | 10 (11) |
| Vocational/technical education | 7 (44) | 44 (47) |
| University | 2 (13) | 39 (42) |
Notes: aThe online survey also provided the answer category: prefer not to say (n=1), bThe online survey also provided the answer category: clinically isolated syndrome (n=1), cThe online survey had n=17 (18%) missing, dIn the focus groups the number of past disease-modifying therapies (DMT) used ranged from 1–4.
Abbreviations: MS, multiple sclerosis; PPMS, primary progressive multiple sclerosis; RRMS, relapsing-remitting multiple sclerosis; SPMS, secondary progressive multiple sclerosis.