TABLE 1.
Meeting dates | Working group | Meeting objectives |
---|---|---|
Jul 19, 2018 | Core and steering group a |
|
(1) Oct 15, 2018 | Core and steering group |
|
(2) Dec 20, 2018 | Core and steering group |
|
(3) Jan 21, 2019 | Patients and Health Care Professionals Panel b |
|
(4) Feb 12, 2019 | Core and steering group |
|
(5) Mar 11, 2019 | Patients and Health Care Professionals Panel |
|
(6) May 6, 2019 | Patients and Health Care Professionals Panel |
|
(7) May 20, 2019 | Core and steering group |
|
(8) May 27, 2019 | International Academic Council c |
|
(9) Jun 17, 2019 | Patients and Health Care Professionals Panel |
|
The core group consisted of four epidemiologists and hematologists and two patient representatives; the steering group consisted the core group and an additional eight hematologists, a nursing specialist, a representative from the World Federation of Hemophilia, and two patient representatives.
The Patients and Health Care Professionals Panel consisted of 17 hemophilia care professionals of eight different disciplines and 15 patient representatives, including persons with hemophilia, parents of children with hemophilia, and female carriers of hemophilia.
The International Academic Council consisted of two hematologists, a gynecologist, a nursing specialist, a physiotherapist, a public health expert, and a value‐based health care expert.