Table 2.
Questionnaires sent to participants by email or answered at the study clinic.
| Questionnaire | Subject | Validated? | All | Arm 1 and normal screening | Arm 2 and 3 and advanced diseasea | ||
|---|---|---|---|---|---|---|---|
| At registration | One time | Annually | One time | Each visit | |||
| Background | |||||||
| Anthropomorphic data | Weight, height etc. | NA | ✓ | ✓ | |||
| Social historyb | Socioeconomic status | NA | ✓ | ✓ | |||
| Medical historyc | Medical history | ✓ | ✓ | ||||
| Habitsd | Environment | NA | ✓ | ✓ | |||
| Industrial exposure | Environment | NA | ✓ | ✓ | |||
| Quality of life | |||||||
| PHQ9 | Depression | Yes | ✓ | ✓ | ✓ | ||
| GAD-7 | Anxiety | Yes | ✓ | ✓ | ✓ | ||
| SWLS | Quality of life | Yes | ✓ | ✓ | ✓ | ||
| Other questions of happiness and wellbeing | Quality of life | No | ✓ | ✓ | ✓ | ||
| SF-36 | Health-related quality of life | Yes | ✓ | ✓ | |||
| PSS-10 | Stress and anxiety | Yes | ✓ | ✓ | |||
| PCL-5 (MGUS specific) | PTSD from MGUS diagnosis | Yes | ✓ | ||||
| PCL-5 (nonspecific) | PTSD other | Yes | ✓ | ||||
| Symptoms | |||||||
| BPI | Pain | Yes | ✓ | ✓ | |||
| NSS | Neuropathy | Yes | ✓ | ✓ | |||
| DN4 | Neuropathy | Yes | ✓ | ✓ | |||
| Symptoms of PMR | PMR | No | ✓ | ✓ | |||
| Social background | |||||||
| MSPSS | Social support | Yes | ✓ | ✓ | |||
| CD-RISC-10ICE | Resilience | Yes | ✓ | ✓ | |||
| ACE | Childhood traumatic events | Yes | ✓ | ✓ | |||
| LEC | Lifetime traumatic events | Yes | ✓ | ✓ | |||
Note that all participants were asked to answer four questionnaires when providing informed consent electronically or if they provided an email address in their written consent form.
Questionnaires were not sent to participants who did not provide an email address and were not called into the study.
PHQ9 patient health questionnaire, GAD-7 General anxiety disorder, SWLS satisfaction with life scale, SF-36 36-item short-form survey, PSS-10 perceived stress scale, PCL-5 post-traumatic stress disorder checklist for DSM-5, BPI brief pain inventory, NSS neuropathy symptom scale, DN4 Douleur neuropathique. PMR polymyalgia rheumatica, MSPSS Multidimensional scale of social support, CD-RISC-10ICE Connor-Davidson resilience scale. ACE adverse childhood events. LEC Lifetime events checklist.
✓Showing the timing of the questionnaire in that row is the time/frequency assigned to that column.
aIncluding MM, WM, SMM, and SWM.
bEmployment, marital status, education, income, and residence.
cIncluding obstetric history for women.
dIncluding smoking and alcohol intake.