Table 3.
Participant characteristics
| Overall sample [N = 40] | |
|---|---|
| Sex | |
| Female | 27 (67.5) |
| Male | 13 (32.5) |
| Age, years | |
| Min, max | 20, 63 |
| Median (Q1, Q3) | 41.0 (35.0, 47.8) |
| Mean (SD) | 41.6 (11.3) |
| Time since diagnosis | |
| 6–12 months | 3 (7.5) |
| 1–2 years ago | 8 (20.0) |
| 2–5 years ago | 8 (20.0) |
| 5–10 years ago | 6 (15.0) |
| 10–20 years ago | 11 (27.5) |
| 20+ years ago | 4 (10.0) |
| Ability to perform usual activity | |
| I am not at all able to perform my usual activities | 0 (0.0) |
| I am somewhat able to perform my usual activities | 14 (35.0) |
| I am very much able to perform my usual activities | 26 (65.0) |
| Level of emotional burden | |
| I am not at all emotionally burdened by my disease | 4 (10.0) |
| I am somewhat emotionally burdened by my disease | 30 (75.0) |
| I am very much emotionally burdened by my disease | 4 (10.0) |
Data are expressed as n (%) unless otherwise specified
N sample size, Q1 interquartile range, first quartile, Q3 interquartile range, quartile 3, SD standard deviation, Min minimum, Max maximum