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Characteristics of participants’ child with Sanfilippo syndrome
| Oldest child with Sanfilippo syndrome | Median | Range |
|---|---|---|
| Age (in years) | 8 | (4–36) |
| Number | % | |
| Sanfilippo subtype | ||
| Type A | 17 | 68% |
| Type B | 6 | 24% |
| Type C | 2 | 8% |
| Type D | 0 | 0% |
| Ever participated in a clinical treatment trial | 5 | 20% |
In the case of more than one affected child, characteristics reflect the oldest living child
