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. 2020 Nov 16;106(6):570–576. doi: 10.1136/archdischild-2020-320189

Table 4.

Overview of study population and interviews

Family participants and identified Child’s age at recruitment Male or female Able to take part in interview? TfSL category Number and location of interviews
Child (C001)
Mother (M001)
Father (F001)
5
Cancer
M Yes 1
  1. Home

  2. Ward

  3. Home

Child (C002)
Mother (M002)
Brother (B002)
17
Congenital
F Yes 2/3
  1. Home

  2. Home

  3. Home

Mother (M003)
Father (F003)
8
Congenital
F No (non-verbal communication) 3
  1. Home

  2. Home

  3. Home

Father (F004) 8
Congenital
F No (non-verbal communication) 3 1. Home
Child (C006)
Mother (M006)
6
Congenital
M Yes 1
  1. Ward

  2. Outpatients

  3. Outpatients

Mother (M006) 18
Congenital
M No (non-verbal communication) 4
  1. Home

  2. Home

  3. Home

Child (C007)
Mother (M007)
Father (F007)
7
Cancer
M Yes 1
  1. Ward

  2. Home

  3. Home

Child (C008)
Mother (M008)
Brother (B008)
5
Congenital
M Yes 1
  1. Home

  2. Home

  3. Home

Child (C009)
Mother (M009)
Father (F009)
11
Cancer
F Yes 1
  1. Outpatients

  2. Ward

  3. Home

Mother (M010) 5
Congenital
M No (too unwell) 1/2 1. Ward
Child (C011)
Mother (M011)
Step-father (F011)
17
Congenital
F Yes 1
  1. Ward

  2. Home

  3. Home

Child (C012)
Mother (M012)
14
Cancer
M Yes 1 1. Outpatients
Child (C013)
Mother (M013)
14
Cancer
M Yes 2 (as a result of 1)
  1. Home

  2. Home

Child (C014)
Mother (M014)
10
Congenital
M Yes 3
  1. Home

  2. Home

  3. Home

TfSL, Together for Short Lives.