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. 2019 May 7;4(1):1103. doi: 10.23889/ijpds.v4i1.1103
Statements and recommendations – governance of linked data sets Y N A

1. Develop a plan to make the data linkage approval process more efficient, without compromising the evaluation process. 19 0 4
2. It is important to invest in a collection of linked data sets to promote efficient research while enhancing privacy protection. 16 2 4
3. Policy makers should establish categories that identify requests that require different paths or speed for review, e.g., fast-track for urgent research priorities. 14 8 1
4. If a commercial entity funds research with linked data, it should not be involved in the production and review of that research. 9 0 14

5. There should be a committee or governing body with authority to:

  1. Provide oversight and investigation for breaches and/or harms

  2. Apply penalties or other consequences

  3. Develop policies to mitigate the potential for future breaches and/or harms

  4. Intervene when data stewards disagree

  5. Develop and operate an appeals process

  6. Provide certification for data stewards

8 7 8