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. Author manuscript; available in PMC: 2021 May 27.
Published in final edited form as: Fam Cancer. 2018 Jul;17(3):351–360. doi: 10.1007/s10689-017-0059-x

Table 1.

Survey participant characteristics (N = 100)

N (%) M (SD) Range
Demographic characteristics
 Age 26 (3) 19–30
 Education
  College student 30 (30)
  College degree 47 (47)
  Graduate studies 23 (23)
 Race
  White 75 (75)
  African American 4 (4)
  Asian American 10 (10)
  American Indian/Alaska native 1 (1)
  Other/missing 11(11)
 Latina Ethnicity 8 (8)
 Marital status
  Married/partnered 30 (30)
  Single 70 (70)
 Annual household income
  < $50,000 18 (18)
  $50,000–$100,000 24 (24)
  > $100,000 15 (15)
  Missing 43 (43)
Clinical characteristics
 Tested for BRCA 71 (71%)
 Number of cancer-affected relatives 3 (2) 1–15
 Age of youngest affected relative 43 (7.4) 24–69
Psychosocial variables
 Familial disruption (brief FAM) 14.9 (4.1) 3–25
 Peer support (perceived social support) 17.1 (3.2) 7–20
 Cancer-related distress (impact of events scale) 21.9 (14.6) 0–59
 Perceived cancer risk 5.13 (1.2) 1–7
 Satisfaction with information total score 29.8 (5.8) 11–40
Satisfaction with information items M (SD) Range
I know exactly what it is that I want to learn about my health in regards to BRCA1/2 4.0 (0.9) 1–5
At this time, I can figure out how and where to get the BRCA1/2 information I need 3.9 (1.2) 1–5
BRCA1/2 information is more difficult for me to obtain than other types of information. (Reverse scored) 3.4 (1.1) 1–5
I am satisfied with the way I currently learn about BRCA1/2 issues 3.5 (0.9) 1–5
I feel that I am in control over how and what I learn about my health 4.1 (0.9) 1–5
I want BRCA1/2 information I don’t know how to get. (Reverse scored) 3.3 (1.2) 1–5
I need BRCA1/2 information that I can’t afford the time or effort to get. (Reverse scored) 3.8 (1.1) 1–5
I need BRCA1/2 information that I can’t afford to pay for. (Reverse scored) 3.9 (1.1) 1–5