Table 1.
N (%) | M (SD) | Range | ||
---|---|---|---|---|
Demographic characteristics | ||||
Age | 26 (3) | 19–30 | ||
Education | ||||
College student | 30 (30) | |||
College degree | 47 (47) | |||
Graduate studies | 23 (23) | |||
Race | ||||
White | 75 (75) | |||
African American | 4 (4) | |||
Asian American | 10 (10) | |||
American Indian/Alaska native | 1 (1) | |||
Other/missing | 11(11) | |||
Latina Ethnicity | 8 (8) | |||
Marital status | ||||
Married/partnered | 30 (30) | |||
Single | 70 (70) | |||
Annual household income | ||||
< $50,000 | 18 (18) | |||
$50,000–$100,000 | 24 (24) | |||
> $100,000 | 15 (15) | |||
Missing | 43 (43) | |||
Clinical characteristics | ||||
Tested for BRCA | 71 (71%) | |||
Number of cancer-affected relatives | 3 (2) | 1–15 | ||
Age of youngest affected relative | 43 (7.4) | 24–69 | ||
Psychosocial variables | ||||
Familial disruption (brief FAM) | 14.9 (4.1) | 3–25 | ||
Peer support (perceived social support) | 17.1 (3.2) | 7–20 | ||
Cancer-related distress (impact of events scale) | 21.9 (14.6) | 0–59 | ||
Perceived cancer risk | 5.13 (1.2) | 1–7 | ||
Satisfaction with information total score | 29.8 (5.8) | 11–40 | ||
Satisfaction with information items | M (SD) | Range | ||
I know exactly what it is that I want to learn about my health in regards to BRCA1/2 | 4.0 (0.9) | 1–5 | ||
At this time, I can figure out how and where to get the BRCA1/2 information I need | 3.9 (1.2) | 1–5 | ||
BRCA1/2 information is more difficult for me to obtain than other types of information. (Reverse scored) | 3.4 (1.1) | 1–5 | ||
I am satisfied with the way I currently learn about BRCA1/2 issues | 3.5 (0.9) | 1–5 | ||
I feel that I am in control over how and what I learn about my health | 4.1 (0.9) | 1–5 | ||
I want BRCA1/2 information I don’t know how to get. (Reverse scored) | 3.3 (1.2) | 1–5 | ||
I need BRCA1/2 information that I can’t afford the time or effort to get. (Reverse scored) | 3.8 (1.1) | 1–5 | ||
I need BRCA1/2 information that I can’t afford to pay for. (Reverse scored) | 3.9 (1.1) | 1–5 |