Table 1.
Survey participant characteristics (N = 100)
| N (%) | M (SD) | Range | ||
|---|---|---|---|---|
| Demographic characteristics | ||||
| Age | 26 (3) | 19–30 | ||
| Education | ||||
| College student | 30 (30) | |||
| College degree | 47 (47) | |||
| Graduate studies | 23 (23) | |||
| Race | ||||
| White | 75 (75) | |||
| African American | 4 (4) | |||
| Asian American | 10 (10) | |||
| American Indian/Alaska native | 1 (1) | |||
| Other/missing | 11(11) | |||
| Latina Ethnicity | 8 (8) | |||
| Marital status | ||||
| Married/partnered | 30 (30) | |||
| Single | 70 (70) | |||
| Annual household income | ||||
| < $50,000 | 18 (18) | |||
| $50,000–$100,000 | 24 (24) | |||
| > $100,000 | 15 (15) | |||
| Missing | 43 (43) | |||
| Clinical characteristics | ||||
| Tested for BRCA | 71 (71%) | |||
| Number of cancer-affected relatives | 3 (2) | 1–15 | ||
| Age of youngest affected relative | 43 (7.4) | 24–69 | ||
| Psychosocial variables | ||||
| Familial disruption (brief FAM) | 14.9 (4.1) | 3–25 | ||
| Peer support (perceived social support) | 17.1 (3.2) | 7–20 | ||
| Cancer-related distress (impact of events scale) | 21.9 (14.6) | 0–59 | ||
| Perceived cancer risk | 5.13 (1.2) | 1–7 | ||
| Satisfaction with information total score | 29.8 (5.8) | 11–40 | ||
| Satisfaction with information items | M (SD) | Range | ||
| I know exactly what it is that I want to learn about my health in regards to BRCA1/2 | 4.0 (0.9) | 1–5 | ||
| At this time, I can figure out how and where to get the BRCA1/2 information I need | 3.9 (1.2) | 1–5 | ||
| BRCA1/2 information is more difficult for me to obtain than other types of information. (Reverse scored) | 3.4 (1.1) | 1–5 | ||
| I am satisfied with the way I currently learn about BRCA1/2 issues | 3.5 (0.9) | 1–5 | ||
| I feel that I am in control over how and what I learn about my health | 4.1 (0.9) | 1–5 | ||
| I want BRCA1/2 information I don’t know how to get. (Reverse scored) | 3.3 (1.2) | 1–5 | ||
| I need BRCA1/2 information that I can’t afford the time or effort to get. (Reverse scored) | 3.8 (1.1) | 1–5 | ||
| I need BRCA1/2 information that I can’t afford to pay for. (Reverse scored) | 3.9 (1.1) | 1–5 | ||