Table 5.
Citation | Intervention Development | Community Needs and Preferences | Community Engagement | Workforce Preparation | Communication Methods |
---|---|---|---|---|---|
Muller et al., 2017 [7] | Developed in coordination with SCF, a tribally owned and operated health care organization. | Previous survey findings showed the majority of customer-owners over 50 used text messaging. | Text message content was developed with input from SCF customer-owners and tribal leadership. | The intervention was integrated into an existing SCF program. | The intervention group received up to 3 text messages sent 1 month apart. |
Sandiford et al., 2019 [8] | Follow-up to an existing Bowel Screening Pilot using mailed invitation and reminder letters. | Patient and cultural barriers | During telephone calls, community coordinators sought to remove any barriers to screening, such as how to perform the test. | The callers’ script was reviewed by health literacy experts. | All non-respondents were sent reminder letters. The intervention group also received 3+ phone calls over 4 weeks. Community coordinators spoke with participants in their native languages. |
MacDonald et al., 2021 [9] | Follow-up to a survey showing high acceptability for HPV self-testing among Māori women. | Patient and cultural barriers | The study was under-taken in partnership with primary care and the Northland District Health. | Clinic staff were given an educational update on HPV, informed consent, and the HPV self-test. | Text, email, letter, and phone calls from clinics and outreach by kaiāwhina. |
Haverkamp et al., 2020 [10] | Developed in partnership with 3 tribally operated health facilities that participated in study. | Patient and structural barriers † | American Indian CHRs contacted intervention nonrespondents to discuss the importance of CRC screening and how to use the FIT kit. | Clinic admin and staff were informed about the study and CHRs were educated about screening recommendations and intervention protocol. | FIT kits were mailed to intervention groups and CHRs provided outreach (i.e., phone calls and home visits). |
Chow et al., 2020 [11] | Developed in partnership with the Wequedong Lodge, TBRHSC, the Nishnawbe Aski Nation Chiefs Assembly, and CCO’s. Indigenous Cancer Care Unit. | Geographic, transportation, and cultural barriers | Cancer screening education and opportunistic screening was provided for those staying at the lodge (mostly from rural FN populations). | Community chiefs and physicians were notified about the program and given information about program logistics and patient follow-up. | A FN liaison spoke with clients in their native language. A FN-specific education toolkit was used during appointments. |
Mema et al., 2017 [5] | Provision of ‘one stop shop’ cancer screening services in many communities, including FN. | Geographical barriers—communities were chosen based on their need for cancer screening services using a readiness assessment tool. | Leverage existing relationships with mobile mamography service. | Local clinical staff provided Pap and FIT tests. | Recall letters were sent to all clients who had participated in Screen Test in the past and were due for breast cancer screening. |
Dorrington et al., 2015 [12] | Interventions were designed based on PDSA cycles and tested for cultural acceptability with the ACCHS Women’s Group. | Patient barriers | Client surveys and focus groups with stakeholders | The Social Health Team was educated on women’s preventative health and cervical cancer screening to faciliate discussions with ACCHS clients. HCPs were educated on how to use a data collection tool for Pap smears. |
Promotional material was used to raise awareness of cervical screening. A reminder letter was updated to include culturally appropriate cervical cancer screening information. |
Cassel et al., 2020 [15] | A peer-led intervention facilitated by kāne and Native Hawaiian physicians. | CRC health dispartities among Native Hawaiian men | Discussions about CRC were held at community-based venues and participants were given a FIT kit. | Education materials and curricula were developed by Native Hawaiian physicans and modified based on community feedback. | 21 community sessions on CRC screening. |
Tolma et al., (2018) [16] | Formative evaluation to determine the feasibility and early impact of a CBPR intervention. | Geographical disparties | Clinic and community-based components on multiple system levels. | Evaluation planning based on years of formative research in the community. | Communication with HCP, discussion groups, and a congratulatory gift. |
Adcock et al., 2019 [11] | This study explored the potential acceptability of an intervention. | Desire for bodily autonomy (privacy, control over ones body) | Focus groups, interviews, and surveys with never/underscreened Māori women. | Not addressed | CBRs recruited Māori women for interviews and focus groups. Participants surveyed up to 10 Māori female peers. |
Zehbe et al., 2016 [17] | Designed with 11 FN partner communities using a PAR framework. | Geographic and cultural barriers | Interviews and focus groups with HCPs and women living on reserves about CC screening barriers. | CBRAs invited women to participate after an educational event and other recruitment strategies. | CBRAs facilitated screening implementation and data collection. Participants were asked how they wanted to be contact if they had a positive HPV test result. |
Winer et al., 2016 [18] | Designed with input from Hopi tribal partners, local project staff, and community advisors. | Patient barriers | In-person community recruitment events | Not addressed | Recruitment flyers and informational brochures were given at community events, door-to-door health education campaigns, and tribal radio announcements. HPV test results were communicated by letter or telephone, based on preference. |
SCF = Southcentral Foundation, Customer-owners = SCF patients, CHR = community health representative, TBRHSC = Thunder Bay Regional Health Sciences Centre, CCO = Cancer Care Ontario, ACCHS = Aboriginal Community Controlled Health Service, HCP = Health Care Provider, kāne = Native Hawaiian men, kaiāwhina = non-clinical community Māori health workers, PAR = participatory action research, CBPR = community-based participatory research, CBRAs = community-based research assistants † Patient and structural barriers may include geographic isolation, lack of transportation, not having a regular HCP, failure of HCP to recommend screening, lack of a clinical tracking/reminder system, embarrassment, privacy concerns, distrust of the health care system, and insufficient knowledge about screening.