TABLE 3.
Caregiver Emotional Need Identified | Proposed Delivery for Support Mechanism | Representative Quotes |
---|---|---|
Support reporting role | ICU diary | 14: “I did, on her request, I tried to diary the hospital stay on a calendar. This was post discharge, but my memory was still pretty fresh… as much detail as I could, so I just wrote that down [on a calendar] and gave it to her. She asked for it. She asked to see pictures.” |
Validation and catharsis | Peer support—connect with others via shared experience of caregiver role | 10: “…somebody for the family to walk alongside, too, that’s been there…at least you know you’re not alone.” 8: “Finding people who I felt like I could talk to was another challenge. We …. kept saying things like ‘we feel like we’re contagious.’ Like if people listen too deeply or too intently to our story, they themselves might become situated in the same place that we were.” |
Spirituality | Offer spiritual support across the recovery arc | 11: “Prayer. Having some sort of spiritual purpose in what you’re going through and trying to find a similar learning.” |
Independence from patient | Separate support pathways | 6: “Being able to break away.” |
Physical space | 12: “I’m still kind of on the payroll, so to speak, trying to get his life back in order… It’s like a second job… You need permission to also take care of yourself.” |