Table 2.
Details of deceased patients including three cases with compassionate care
Cardiac diagnosis | Extracardiac anomalies | Delivery (weeks) | Preinter-vention-death | Operation | Reason for demise | Survival | |
---|---|---|---|---|---|---|---|
1 | PAIVS,VCAC, RVDCC | – | 41 + 2 | Yes | Parents decided for compassionate care after birth | Compassionate Care | 2 days |
2 | PAIVS | – | 35 + 0 | Yes | – | Cardiac failure | 1 day |
3 | PAIVS + VCAC, RAA | – | 38 + 4 | No | PDA stent not possible because of abnormal development of DA, BT Shunt, closing of VCAC because of hemodynamic worsening | Cardiac failure | 4 months + 4 days |
4 | PAIVS, restrictive FO, VCAC | – | 39 + 1 | No | Rashkind, implantation 2 PDA stents, high-frequency perforation of PV, sequential balloon dilatation und implantation of RVOT-stent | Metabolic acidosis, post-intervention cardiac failure | 13 days |
5 | PAIVS, VCAC | – | 40 + 0 | No | PDA stent, BT shunt, ECMO because of suspicion of shunt closure, reopening of shunt and stent implantation | Post-hypoxia and cerebral edema | 47 days |
6 | PAIVS, tricuspid dysplasia, VCAC, restrictive FO | – | 36 + 6 | No | Unsuccessfull catheter intervention for opening PA, therefore emergent AP shunt, hybrid RVOT- opening und PA-RVOT-stent | Intraoperative electro-mechanical dissociation with exitus | 4 days |
7 | PAIVS, VCAC | – | 37 + 4 | No | emergent BT shunt, PA closening because of VCAC, PA-reconstruction and central AP shunt | Cardiac failure | 10 days |
8 | PAIVS,VCAC | – | 38 + 5 | Yes | Parents decided for compassionate care after birth | Compassionate care, hypoxia, cardiac failure | 8 months + 25 days |
9 | PAIVS, VCAC | – | 38 + 0 | No | Palliative Rashkind to enlarge ASD for further medical care, no surgery or intervention with PV opening and RV decompression due to RVDCC | Cardiac failure, hypoxia | 15 days |
10 | PAIVS, moderate TI | – | 39 + 1 | Yes | Parents decided for compassionate care | Compassionate care | 1 day |
11 | PA:IVS, severe TI, severe hypoplasia PVs | – | 39 + 1 | Yes | Inoperable variant due to severe hypoplasia of pulmonary veins, medical treatment in cardiac ICU without intervention and catheterization | Cardiac failure | 23 days |
12 | PAIVS, VCAC, RVDCC, IUGR, restrictive FO | – | 37 + 1 | NO | Rashkind, VCAC closure, right modified BT shunt | Cardiac failure | 7 days |
PAIVS pulmonary atresia with intact ventricular septum, IUGR intrauterine growth restriction, RV right ventricle, DA ductus arteriosus, PV pulmonary valve, VCAC ventriculo-coronary-arterial communication, RAA right aortic arch, PDA stent patent ductus arteriosus stent, BT shunt Blalock–Taussig shunt, FO foramen ovale, RVOT right ventricular outflow tract, ECMO extracorporeal membrane oxygenation, AV aortic valve, RVDCC right ventricle-dependent coronary circulation, LV left ventricle, AP shunt aortopulmonary shunt, PV pulmonary veins