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. 2021 Feb 14;304(1):81–90. doi: 10.1007/s00404-020-05929-0

Table 2.

Details of deceased patients including three cases with compassionate care

Cardiac diagnosis Extracardiac anomalies Delivery (weeks) Preinter-vention-death Operation Reason for demise Survival
1 PAIVS,VCAC, RVDCC 41 + 2 Yes Parents decided for compassionate care after birth Compassionate Care 2 days
2 PAIVS 35 + 0 Yes Cardiac failure 1 day
3 PAIVS + VCAC, RAA 38 + 4 No PDA stent not possible because of abnormal development of DA, BT Shunt, closing of VCAC because of hemodynamic worsening Cardiac failure 4 months + 4 days
4 PAIVS, restrictive FO, VCAC 39 + 1 No Rashkind, implantation 2 PDA stents, high-frequency perforation of PV, sequential balloon dilatation und implantation of RVOT-stent Metabolic acidosis, post-intervention cardiac failure 13 days
5 PAIVS, VCAC 40 + 0 No PDA stent, BT shunt, ECMO because of suspicion of shunt closure, reopening of shunt and stent implantation Post-hypoxia and cerebral edema 47 days
6 PAIVS, tricuspid dysplasia, VCAC, restrictive FO 36 + 6 No Unsuccessfull catheter intervention for opening PA, therefore emergent AP shunt, hybrid RVOT- opening und PA-RVOT-stent Intraoperative electro-mechanical dissociation with exitus 4 days
7 PAIVS, VCAC 37 + 4 No emergent BT shunt, PA closening because of VCAC, PA-reconstruction and central AP shunt Cardiac failure 10 days
8 PAIVS,VCAC 38 + 5 Yes Parents decided for compassionate care after birth Compassionate care, hypoxia, cardiac failure 8 months + 25 days
9 PAIVS, VCAC 38 + 0 No Palliative Rashkind to enlarge ASD for further medical care, no surgery or intervention with PV opening and RV decompression due to RVDCC Cardiac failure, hypoxia 15 days
10 PAIVS, moderate TI 39 + 1 Yes Parents decided for compassionate care Compassionate care 1 day
11 PA:IVS, severe TI, severe hypoplasia PVs 39 + 1 Yes Inoperable variant due to severe hypoplasia of pulmonary veins, medical treatment in cardiac ICU without intervention and catheterization Cardiac failure 23 days
12 PAIVS, VCAC, RVDCC, IUGR, restrictive FO 37 + 1 NO Rashkind, VCAC closure, right modified BT shunt Cardiac failure 7 days

PAIVS pulmonary atresia with intact ventricular septum, IUGR intrauterine growth restriction, RV right ventricle, DA ductus arteriosus, PV pulmonary valve, VCAC ventriculo-coronary-arterial communication, RAA right aortic arch, PDA stent patent ductus arteriosus stent, BT shunt Blalock–Taussig shunt, FO foramen ovale, RVOT right ventricular outflow tract, ECMO extracorporeal membrane oxygenation, AV aortic valve, RVDCC right ventricle-dependent coronary circulation, LV left ventricle, AP shunt aortopulmonary shunt, PV pulmonary veins