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. 2021 May 28;11(5):e043224. doi: 10.1136/bmjopen-2020-043224

Table 3.

Summary of primary and secondary outcome measures

Measures Items and assessed construct
Clinician measures
 Oncologist and nurse self-efficacy in triadic communication 13-item perceived self-efficacy in triadic communication scale based on Parle et al.51
 Preferences for involvement of the caregiver in communication/decision-making 2 questions developed by Shin et al44 assessing clinician preferences of caregiver involvement in treatment decision-making
 Practical strategies/policies for including caregivers 12-item purpose-built questionnaire assessing how clinicians welcome and manage caregivers in their own workplace
 Knowledge of strategies 14 purpose-designed situational vignette items assessing clinician knowledge/application of strategies to manage caregiver involvement.
 Usability 2-item UMUX-LITE.52 Assesses overall usability (ease of use and system capability) of module.
 Satisfaction with the module/website 11-item purpose designed questionnaire assessing participant satisfaction with features of eTRIO or NSW Health websites.
Caregiver measures
 Caregiver self-efficacy in interactions with their oncologist or nurse 14-item perceived self-efficacy in triadic consultation communication adapted from PEPPI-1043 with seven additional items.
 Caregiver satisfaction with communication with their oncologist and nurse 25-item purpose-designed Consultation Satisfaction Scale adapted from.45 Assesses caregiver satisfaction with clinician communication.
 Health literacy 4 item health literacy measure.53
 Preferences for involvement of the caregiver in communication/decision-making 2-item scale44 assessing caregiver preferences for involvement.
 Caregiver distress 21-item Depression, Anxiety and Stress Scale (DASS-21).46
 Preparedness for caregiving 8-item Preparedness for Caregiving Scale.47
 Patient-caregiver communication 2 subscales of the Health Literacy of Caregiver Scale—Cancer.48 Assesses cancer related patient–caregiver communication and needs and preferences.
 Quality of life (health utility) 12-item quality of life measure assessment of quality of life (AQoL)-4D.49
 Healthcare expenditure Purpose designed incurred cost questionnaire. Assesses patient general practitioner (GP)/specialist visits, hospital stays, counselling and other support services.
 Caregiver time 2-item scale. Valued using the market price of labour (ie, wages or the aged pension).
 Caring experience The Carer Experience Scale.50
 Usability 2-item UMUX-LITE.52 Assesses overall usability (ease of use and system capability) of module.
 Satisfaction with the module/website 11-item purpose designed questionnaire assessing participant satisfaction with features of eTRIO or NSW Health websites.
Patient measures
 Patient self-efficacy in interactions with their oncologist or nurse 11-item perceived self-efficacy triadic consultation communication adapted from PEPPI-1043 with four additional items. Assesses patient self-efficacy in triadic communication with their clinician and caregiver.
 Patient satisfaction with communication with their oncologist and nurse 25-item purpose-designed Consultation Satisfaction Scale, adapted from.45 Assesses patient’s satisfaction with communication with their clinician.
 Health literacy 4 item health literacy measure.53
 Preferences for involvement of the caregiver in communication/ decision-making 2 questions developed by Shin et al.44 Assesses patient preferences of caregiver involvement in treatment decision-making.
 Patient distress 21-item DASS-21.46
 Quality of life (health utility) 12-item quality of life measure AQoL-4D.49
 Healthcare expenditure 8-item purpose designed incurred cost questionnaire. Assesses patient GP/specialist visits, hospital stays, counselling and other support services.
 Usability 2-item UMUX-LITE.52 Assesses overall usability (ease of use and system capability) of module.
 Satisfaction with the module/website 11-item purpose designed questionnaire assessing participant satisfaction with features of eTRIO or NSW Health websites.