Table 2.

Selection of illustrative quotes from rare cancer patients

Topic	Quotes
Experiences regarding diagnosis and treatment in multiple hospitals	“Bad communication from hospital X to hospital Y. Information was regularly missing, which almost led to crucial mistakes regarding treatment several times.”
Experiences regarding hospital choice	“It is difficult to find out if another hospital would be better. You get into a crazy merry-go-around in the hospital where the diagnosis is made. Then you only want one thing, and that is to start treatment as soon as possible.”
Experiences regarding medical expertise and second opinions	“The pathologist of hospital X asked for a second opinion himself, because of the rarity of angiosarcomas and thus I was immediately referred to hospital Y.”
Experiences regarding travel distance to care	“If your life is at stake and you want maximum care, travel time is a secondary problem to be solved.”