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. Author manuscript; available in PMC: 2021 Sep 1.
Published in final edited form as: Soc Sci Med. 2020 Jul 18;261:113214. doi: 10.1016/j.socscimed.2020.113214

Table 2.

Qualitative and mixed methods studies included in review (n = 8)

Citation Type of
cancer
Sample size Sample
characteristics
Definition of
sexual
minority
Definition of
caregiver/
partner
Study
design/analysis
Study domains Findings
Boehmer, Linde, & Freund, 2007. Breast reconstruction following mastectomy for breast cancer: The decisions of sexual minority women. Plastic & Reconstructive Surgery, 119, 464-472. Breast

Not metastatic or recurrent; underwent mastectomy
15 sexual minority women who were patients; 12 support people Patients who did not undergo reconstruction: Mean age 51, 100% white, mean income for one person $57,857

Patients who underwent reconstruction: Mean age 47, 88% white, mean income for one person $52,000, mean income for more than one person $41,667

Caregivers for women without reconstruction: Mean age 49, 75% white, mean income for one person $73,333, mean income for more than one person $55,000

Caregivers for women with reconstruction: Mean age 50, 88% white, mean income for one person $44,167, mean income for more than one person $100,000
Women who reported being lesbian or bisexual or partnering with women “Trusted other”: “most important support person with respect to their cancer care… other than their treating physician” (p. 465). Qualitative interview

Dyadic

Descriptive statistics and grounded theory
Body image, support and satisfaction with reconstruction decision, partner's feeling about decision, impact on relationship Support people provided decision-making support about whether to undergo reconstruction. Partners were more involved in the process than other support people; they found out more details and expressed more preferences about reconstruction. There was more concordance in decision making among couples in which the patient chose not to have reconstruction.
Bristowe, Hodson, Wee, Almack, Johnson, Daveson, Koffman, McEnhill, & Harding, 2018. Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study. Palliative Medicine 32, 23-35. Any “advanced disease,” including cancer 40 lesbian, gay, bisexual, or transgender people (20 patients, 6 current caregivers, 14 bereaved caregivers); 21 had experience with cancer Entire sample: 95% white (34 white British, 4 white other); 68% were in their 50s or 60s Self-identification as lesbian, gay, bisexual, or transgender Unpaid caregiver Qualitative interview

Not dyadic

Inductive thematic analysis
Illness narrative; disclosing identity to health care professionals; partner involvement; support; barriers to care Participants reported relying on a partner for support during cancer, as well as the isolation that could occur after the death of a partner from cancer. Some patients or partners reported that health care providers did not acknowledge their relationship, and they stated that overt acknowledgement from providers was helpful. Some partners of cancer patients were reluctant to attend support groups unless they were known to be LGBT-friendly, but others said other dimensions of their identity (i.e., age, religion) were more salient.
Brown & McElroy, 2018. Unmet support needs of sexual and gender minority breast cancer survivors. Supportive Care in Cancer, 26, 1189-1196. Breast 67 sexual minority breast cancer survivors Full sample: 75% 45 or older; 91% white Lesbian, gay, bisexual, transgender, or queer Partner Cross-sectional internet survey

Not dyadic

Mixed methods: bivariate analysis of quantitative data and thematic analysis of open-ended responses
Impact of breast cancer on life and relationships 58% were in an intimate partnership at the time of survey administration. 40% of respondents reported their sexual or gender identity mattered as far as getting support for them and their partner.

In open-ended responses, many said they thought disclosing their status/relationship to care providers was helpful; it increased trust and reduced stress. Participants reported that treatment had an effect on sexuality and intimate partnerships, with treatment reducing sex drive.
Fish, Williamson, & Brown, 2019. Disclosure in lesbian, gay and bisexual cancer care: Towards a salutogenic healthcare environment. BMC Cancer, 19, 678. Any cancer

Diagnosed within the past 5 years
30 lesbian, gay, or bisexual participants (including 12 SMW, 9 of whom had breast cancer) Age range: 24-65+; none were from Black or Minority Ethnic communities Lesbian or bisexual Partner Qualitative interview

Not dyadic

Thematic analysis
Lesbian, gay, and bisexual people's experiences of disclosure and nondisclosure in health care settings, interactions with health professionals, perceptions of cancer care Partners of cancer patients are a salutogenic resource that medical staff can leverage as long as they are comfortable with the relationship. Sometimes fear of being outed can prevent patients from drawing on partner support in medical settings.
Matthews, Peterman, Delaney, Menard, & Brandenburg, 2002. A qualitative exploration of the experiences of lesbian and heterosexual patients with breast cancer. Oncology Nursing Forum, 29, 1455-62. Breast 13 lesbian women and 28 heterosexual women (HSW) with breast cancer Lesbian women: Mean age 51, 85% white, 61% with household income over $50,000 Self-identification as a lesbian Partner; also “someone to assist me with coping with my illness” and “someone to accompany me to my medical appointments” (p. 1457) Focus groups plus a self-report survey

Not dyadic

Descriptive statistics, thematic analysis and representative case study methods
Attitudes about medical decision making, cancer supportive services, satisfaction with health care, use of alternative/complementary therapies, All lesbians reported having someone to assist them in coping (as did 96% of HSW), and 69% reported having someone available to attend medical appointments with them (compared to 46% of HSW). Of the 5 lesbian women in long-term relationships, 4 were satisfied with the emotional support their partner received from medical providers, and all were satisfied with the inclusion of their partner in medical decisions.

In focus groups of both lesbians and HSW, partners were most frequently mentioned as a source of support. Lesbian women reported medical staff treated partners respectfully.
Paul, Pitagora, Brown, Tworecke, & Rubin, 2014. Support needs and resources of sexual minority women with breast cancer. Psycho-Onology, 23, 578-584. Breast

Underwent mastectomy
13 sexual minority women with breast cancer Mean age 44, 92% white, median family income $70,000-89,999 Self-identification as lesbian, bisexual, gay, or queer Partner Qualitative interview

Not dyadic

Thematic analysis
Decision making after breast reconstruction; support needs and concerns 54% were in long-term relationships at the time of the study. Partnered women noted difficulty finding support groups for female partners; general support groups might not feel safe or appropriate. Seven people noted relationships were disrupted or dissolved by cancer. Young single women were more likely to rely on parents as their main support. Single, middle-aged women had less support overall. Some sought support from former partners. Some partners were very supportive and helped patients adjust to post-treatment bodies and acted as advocates in medical contexts.
Sinding, Grassau, & Barnoff, 2007. Community support, community values: The experiences of lesbians diagnosed with cancer. Women and Health, 44, 59-79. Breast or gynecologic 23 lesbian women (22 breast cancer, 3 gynecologic cancer, 1 both) Entire sample: Mean age 50, majority white/European descent, 65% household income < $70,000 Canadian Self-identification as a lesbian (women whose “primary emotional and sexual relationships are with women,” p. 62) Partner Qualitative interview

Not dyadic

Participatory action research; grounded theory techniques
Cancer experiences; support of partners, friends, and broader lesbian community Women reported receiving support from partners; some believed lesbians had more support than HSW. Some reported that because their partners were women, they were empathic and understanding. A smaller number reported not receiving adequate emotional support or communication from partners. The fact that participants and partners were the same gender was seen as helpful in some ways (“My partner has ovaries. My partner has a uterus. My partner could be in my position” [p. 67]) but unhelpful in others (i.e., having similar bodies may make partners acutely aware of the changes patients go through). Although some women believed mastectomy was not as problematic for lesbians because their partners did not value breasts as much as male partners did, at least one woman reported she did not find that to be true in sexual encounters after her surgery.
White, & Boehmer, 2012. Long-term breast cancer survivors’ perceptions of support from female partners: an exploratory study. Oncology Nursing Forum, 39, 210-217. Breast

Not metastatic
15 sexual minority women Mean age 52, 87% white Self-identification as lesbian or bisexual, or preference for a female partner Partner Qualitative interview

Not dyadic

Thematic analysis
Effects of cancer on women’s lives; cancer-related coping; sources and types of social support Main themes: 1) Female partners were the primary source of social support; 2) Partners helped survivors manage health and distress; 3) Partners were often perceived as being distressed themselves; 4) Partners contributed in tangible ways (cooking, child care, other housework); 5) Partners were perceived as experiencing burdens of caregiving; 6) Partners provided support by helping survivors have lives that are “pleasurable, forward-looking, and otherwise not centered on breast cancer” (p. 214)