Table 1.

Demographic characteristics of patients admitted to intensive care unit (ICU) from September 2011 to September 2012 who stayed at least 4 days, participants who initially consented to be contacted, and participants who completed freelisting

Characteristica	ICU overall	Consented to be contacted	Completed freelisting|
Patients	n = 563	n = 73	n = 19
Age, mean (SD), y	58.9 (15.9)	57.5 (13.0)	55.3 (11.8)
Nonwhite, %	45.5	32.9	47.4
Female sex, %	43.7	45.2	68.4b,c
Days in ICU	7.6 (5.2–12.3)	10.0 (6.0–16.0)	11.0 (7.0–13.0)
Days in hospital	18.3 (16.5–22.7)	22.0 (14.0–33.0)	23.0 (15.0–29.0)
Discharge location, %
Died/hospice	39.4	24.7	—
Home	28.8	35.6	68.4
Skilled nursing facility	13.5	17.8	21.1
Long-term acute care hospital	10.5	13.7	0.0
Acute rehabilitation center	5.9	8.2	10.5
Family members	—	n = 61	n = 26
Age, mean (SD), y	—	56.2 (10.5)	55.1 (10.6)
Nonwhite, %	—	29.5	11.4c
Female sex, %	—	57.4	53.8
Relationship to patient
Spouse	—	60.7	61.5
Sibling	—	19.7	30.8
Child	—	14.8	7.7
Parent	—	4.9	0
Patient outcome, %
Survived with capacity	—	39.3	42.3
Survived without capacity	—	21.3	11.5
Died	—	39.3	46.2

^aData are presented as median (interquartile range) unless otherwise specified in this column.

^bP < .05 for comparison with ICU registry, determined by using univariate statistical analysis.

^cP < .05 for comparison with those who consented to be contacted, determined by using univariate statistical analysis.