TABLE 5.
Factors influencing adolescents’ and parents’ choicesa
| N dyads | Adolescents (n%) | Parents (n%) | P-value | |
|---|---|---|---|---|
| 1 can use the genetic test results to improve my/my child’s health | 162 | 154 (95.1%) | 155 (95.7%) | .80 |
| Taking part in research helps others | 163 | 149 (91.4%) | 154 (94.5%) | .30 |
| 1 want to learn as much as I can about my/child’s health | 162 | 147 (90.7%) | 156 (96.6%) | .039 |
| 1 am confident that I can deal with the genetic test results | 163 | 139 (85.3%) | 142 (87.1%) | .62 |
| This test is a unique opportunity | 161 | 133 (82.6%) | 141 (87.6%) | .17 |
| This test is free | 157 | 92 (58.6%) | 108 (68.8%) | .042 |
| 1 will feel relief if I get a negative test result | 159 | 91 (57.2%) | 102 (64.2%) | .20 |
| 1 might worry if I/my child get(s) a positive genetic test result | 161 | 68 (42.2%) | 68 (42.2%) | 1.0 |
| 1 only want results if there is something I can do to prevent the onset of a disease | 153 | 43 (28.1%) | 44 (28.8%) | .87 |
| 1 do not want to know health information if there is nothing 1 can do about it | 156 | 36 (23.1%) | 46 (29.5%) | .096 |
| My genetic test results might not be kept private | 158 | 29 (18.4%) | 54 (34.2%) | .0005 |
| 1 prefer not to know certain things about my health | 150 | 27 (18.0%) | 34 (22.7%) | 0.29 |
| A positive genetic test result might cause others to treat me differently. | 147 | 20 (13.6%) | 30 (20.4%) | .11 |
| 1 do not want my/my child’s health insurance company to know my genetic test results | 152 | 19 (12.5%) | 50 (32.9%) | <.0001 |
| 1 do not want the genetic test results in my/my child’s medical record | 153 | 17 (11.1%) | 45 (29.4%) | <.0001 |
a
Data restricted to information from both parent and adolescent. P-value used McNemar’s test to account for relatedness within dyads.