Table 2.
Validated codes, and validation performance metrics for each COPC.
| COPC/Search terms | ICD-10 Code | N with code | N captured by search terms, % | True Positive, % | False Negative, % |
|---|---|---|---|---|---|
| Fibromyalgia | M79.7 | 8401 | 8263, 98.4% | 19/20 95% | 0/200% |
| • Fibromyalgia • fibrositis • fibromyalgia syndrome fibromyositis • FMS • diffuse myofascial pain syndrome | |||||
| Irritable Bowel Syndrome | K58.0 | 5551 | 5551, 100% | 20/20 100% | 0/110% |
| • irritable bowel syndrome • irritable bowel • irritable colon • IBS • mucous colitis • spastic colon • nervous colon |
K58.1 | 1350 | 1350, 100% | ||
| K58.2 | 1459 | 1459, 100% | |||
| K58.8 | 239 | 239, 100% | |||
| K58.9 | 9828 | 9817, 99.9% | |||
| Interstitial Cystitis/Bladder Pain Syndrome | N30.10 | 2111 | 2110, 99.9% | 19/20 95% | 0/10% |
| • interstitial cystitis • bladder pain syndrome • painful bladder syndrome • IC/BPS • IC/PBS • (“chronic pelvic pain” AND “urinary symptoms”) |
N30.30 | 23 | 23, 100% | ||
| Chronic Prostatitis | N41.1 | 310 | 308, | 19/20 | 0/2 |
| • chronic prostatitis • inflammatory prostatitis • (“chronic” AND “prostatitis”) OR (“prostatitis” AND “unspecified”) |
99.3% | 95% | 0% | ||
| Vulvodynia | N94.810 | 184 | 184, 100% | 18/20, 90% | 0/1, 0% |
| • Vulvodynia • Vestibulodynia • vulvar vestibulitis • vulvitis • vulvar discomfort |
N94.818 | 1872 | 1871, 99.9% | ||
| N94.819 | 76 | 76, 100% | |||
| Migraine | G43.XXX (exclude G43.6- [cerebral infarct] and G43.A- / [cyclical vomiting] | 34604 | 34,567, 99.9% | 20/20, 100% | 0/20, 0% |
| • Migraine • Migraines • sick headache • chronic daily headache • status migrainosus | |||||
| Chronic tension-type headache | G44.201 | 168 | 168, 100% | 20/20, 100% | 1/20, 5% |
| • tension headache • tension type headache • stress headache • tension-vascular headache | |||||
| G44.209 | 2873 | 2835, 98.6% | |||
| G44.211 | 42 | 42, 100% | |||
| G44.219 | 809 | 808, 99.9% | |||
| G44.221 | 447 | 446, 99.8% | |||
| G44.229 | 1274 | 1272, 99.8% | |||
| Temporomandibular disorder | M26.60 | 1293 | 1265, 97.8% | 18/20, 90% | 9/20, 45% |
| • temporomandibular disorder • TMD • temporomandibular joint disorder • TMJD • temporomandibular joint disease • ((“temporomandibular” AND (“disease” OR “disorder”)) • TMJ syndrome • TMJ arthralgia • TMJ tenderness • TMJ pain • TMJ disease • TMJ dysfunction • temporomandibular joint syndrome |
M26.62 | 1474 | 1462, 99.9% | ||
| M26.63 | 616 | 614, 99.7% | |||
| S03.0XXA | 326 | 293, 89.8% | |||
| Chronic low back pain | M54.5 | 43,850 | 33,169, 75.6% | 19/20, 95% | 8/20, 40% |
| • back pain chronic~6 • back pain persistent~6 • back pain recurrent~6 • back pain unspecified~6 • back pain nonspecific~6 • back pain idiopathic~6 • back pain functional~6 |
M54.40, 41, 42 | 10649 | 9470, 88.9% | ||
| M54.89 | 804 | 644, 80.1% | |||
| Chronic fatigue syndrome | R53.82 | 8917 | 8916, 99.9% | 20/20, 100% | 0/1, 0% |
| • chronic fatigue • chronic fatigue syndrome • myalgic encephalomyelitis • CFS • ME/CFS • systemic exertion intolerance disease • SEID | |||||
| Endometriosis With pain | N80.XXX AND | 1586 | 1561, 98.4% | 18/20, 90% | 6/20, 30% |
| • endometriosis pain~4 • endometriosis painful~4 • endometrioma pain~4 • endometrioma painful~4 • adenomyosis pain~4 • adenomyosis painful~4 • ((“endometriosis” OR “endometrioma” OR “adenomyosis”) AND (“pelvic pain” OR “dysmenorrhea” OR “dyspareunia” OR “intercourse pain”~4 OR “intercourse painful”~4)) |
(“R10.2” OR “N94.4” OR “N94.5” OR “N94.6” OR “N94.10 “ OR “N94.11 “ OR “N94.12 “ OR “N94.19 “) |