Table 5.

Illustrative free-text answers on the impact of the COVID-19 pandemic on rheumatologic care from survey participants

Stress & Anxiety	“Stress and worry about the pandemic has cause in my opinion my flare ups...”
	“I been getting really anxious...”
	“I find myself getting panic attacks if I have to go outside.”
	“Psicológico, el miedo a salir y saber que soy débil del sistema immunológico” [Psychological, fear of going out and knowing I have a weak immune system]
Avoiding medical care for fear of exposure	“Scared of visiting my doctor when I had a flare”
	“I HAVE BEEN FORCED TO STAY HOME AND CRY MYSELF TO SLEEP FROM MORNING TO NIGHT FROM THE PAINS DUE TO SEVERAL SEVERE FLARES, INSTEAD OF GOING TO THE ER”
	“I am less likely to go to the doctor right now out of fear of catching COVID19”
	“I have very important appointments... I am petrified of going.”
Avoiding outdoors/being inactive	“Limited ability to go out for light exercise and fresh air due to concerns about exposure.”
	“I am more inactive daily”
	“El no poder salir y caminar para fortalecer mis huesos, porque en la casa no es lo mismo y respirar aire, no a sido fácil, te da depresión y ansiedad” [Not being able to go out and walk to strengthen my bones, because at the house it’s not the same, breathing air, it has not been easy, it gives you depression and anxiety]

Free-text answers to the question “Is there another way that the coronavirus pandemic has affected your ability to care for your (your child’s) rheumatologic or autoimmune condition?”