Table 2.
Basic structural elements in the identified DAs
| Main topic | Basic structural elements | References (DA) |
|---|---|---|
| Target group | Women with BRCA1/2 mutation | [57, 58] |
| Women at high risk of breast cancer | [59, 61, 64] | |
| Women at high risk of ovarian cancer | [60, 62, 63] | |
| Addressed target decision | Preventive options related to breast and ovarian cancer | [58] |
| Preventive options only/mainly related to breast cancer | [57, 59, 61, 64] | |
| Preventive options only/mainly related to ovarian cancer | [60, 62, 63] | |
| Medical information | Family history of breast and/or ovarian cancer (explanations, even if brief) | [59–64] |
| Impact of a pathogenic BRCA1/2 mutation (reason for high risk of breast and/or ovarian cancer) | [57–64] | |
| Average morbidity rates for breast and/or ovarian cancer (text and/or number values and/or graphics) | [57, 58, 61–64] | |
| (a) Lifetime risks | (a) [57, 58, 61–63] | |
| (b) Time and/or age-related morbidity rates | (b) [62–64] (example information) | |
| Preventive options (explanations, even if brief) | [57–64] | |
| Outcomes with and without preventive measure (text and/or number values and/or graphics) | [57, 58, 60–64] | |
| Consequences of the different preventive measures (text and/or number values and/or graphics) | [57–64] | |
| Hormone replacement therapy to counteract consequences of risk-reducing removal of both ovaries and Fallopian tubes | [60, 62, 63] | |
| Benefits and risks of the different preventive measures and/or comparison of the options (option grid) | [57, 59–64] | |
| Personal stories (testimonies) | [61, 64] | |
| Appendix with fact boxes | [57, 61] | |
| Tools for decision-making support | General information on dealing with decision-making | [57, 64] |
| Step-by-step guide to decision-making | [57, 62, 63] | |
|
Tools to assist with clarifying own values and preferences, e.g To reflect on personal opinions regarding the advantages and disadvantages of the options by answering set response options (box-ticking) and/or using note spaces for free-form reflections To reflect on the current tendency towards or against a certain option |
[57, 61–63] | |
| Question lists addressing medical information and/or doctor-patient dialogue | [60, 64] | |
| Other | Glossary | [57, 58] |
| Contact addresses and/or internet links | [58, 62–64] | |
| References, further literature | [57–64] |