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[Preprint]. 2021 Jun 2:2021.05.26.21257743. [Version 1] doi: 10.1101/2021.05.26.21257743

Table 1.

Summary of measurement domains assessed by the NCIPR Survey. Data across these domains is contained within the New York NCIPR dataset

Domain Topics addressed
COVID-19 illness Date if illness; symptoms experienced; exposure; length of illness; fever; perceived severity
COVID-19 treatments Hospitalization; ICU admission; medical treatments; at-home treatments; medications; imaging
COVID-19 testing Timing; type; facility; symptoms present
COVID-19 impacts Loss of income; time off work; quarantine behaviors; perceived life disruption; change in social support, sleep, energy levels, stress, relationship satisfaction
COVID-19 perceptions Anxiety about illness; satisfaction with medical care; opinion about when things will go back to normal
COVID-19 lasting effects Length of symptoms; types of symptoms; specific mood disturbances; specific cognitive disturbances; estimate of time to full return to health
Physical characteristics Age; height; weight; blood type
Health characteristics Preexisting health conditions; prior substance use and mental health treatment; current stress level; prior tonsillectomy
Vaccine information and attitudes Date received; manufacturer; side effects; if not vaccinated, attitudes about vaccination for self and/or children; plans to relax COVID-19 safety behaviors after vaccination; if breastfeeding, attitudes about vaccination and infant side effects
Demographic and financial context Gender identity; employment (self and partner); income change due to COVID-19; stability of housing; public assistance; medical insurance; satisfaction with financial situation; MacArthur Scale of subjective social status
Home environment Pets; number of individuals living in home; number of household members that became ill; number of bedrooms in home
Patient behavior COVID safety behavior; coping strategies; drug, nicotine and alcohol use; exercise; use of meditation/mindfulness; religious practices; family/friend support; screen use; social media use
Perceived discrimination Amount; kind; distress

The NCIPR questionnaire also includes questions about child ages, breastfeeding, education, race/ethnicity, income, number of bedrooms in home, utilization of public assistance, and preferred medical health system. For data release and compliance with regulation on indirect identifiers and patient confidentiality, these are removed from released data, as described below.