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. Author manuscript; available in PMC: 2021 Jun 7.
Published in final edited form as: JAMA Netw Open. 2020 Dec 1;3(12):e2025810. doi: 10.1001/jamanetworkopen.2020.25810

Table 3:

Themes identified from transcripts of patient visits with oncologists along with representative quotes matching each theme

Themes Representative Quotes
Statements about cost of care (medications and medical equipment) Patient: “We don’t have no $480 a month” (copay for Capecitabine)
Patient: “I was out of them (medications) for a while and I was so busy and I didn’t fill them. [chuckles] And not only that, it’s money sometimes that I don’t… other things are more important. My son is more important than the darn medicine I was taking. That’s the way I look at it.”
Questions about ability to afford prescribed care Oncologist: “So how much are you paying out of pocket?”
Oncologist: “Now I’m going to ask you a few questions. You didn’t pick up your Zofran; was it you thought you didn’t need it or are there any issues with co-pays?”
Oncologist: “Okay. Maybe [name de-identified], our social worker can help her financially if that’s what she wants”
Oncologist: “I’ll just write a prescription and you can... if it’s too expensive than just tell the pharmacist you’ll pick it up over the counter.”
Effects of cost of care on ability to work and provide for family Patient: “I’ve got a wife and two daughters and a granddaughter that I’m supporting”
Patient: “Monday would be best. Because I want to be able to work Saturday, and Sunday if you can write me-”… “I have to have you write me a note”
Cost burden in non-treatment domains Patient: “Because…. because I don’t have the money to pay somebody for gas to bring me. I have to have somebody with me.”
Doctor: “Where do you live? We have a shuttle bus at the hospital to bring you back to the hospital. Where do you live?”