Table 2.
University Medical Center Utrecht’s return-of-results policy for UFs regarding children, at the time of the interviews.
Outcome categories of UFs | Return policy |
---|---|
Severe, medically actionablea conditions in childhood regarding the child | Always |
Severe conditions, only medically actionable in adulthood regarding the child | Always |
Child’s carrier status for severe autosomal recessive conditions | Never |
Severe, medically nonactionable conditions regarding the child | Never |
UFs unsolicited findings.
aUniversity Medical Center Utrecht’s standpoint takes the term medically actionable to mean that (preventive) medical treatment or controls are available to reduce the chance of a severe/fatal outcome.
Medically unactionable is taken to mean that no (preventive) medical treatment or controls are available to reduce the chance of a severe/fatal outcome.