Table 2.
Qualitative studies | ||||||
---|---|---|---|---|---|---|
Author/year/country | Study type | Setting | Sample | Method of data collection | Outcome | Quality out of max. 10 c |
Ling Lee and Ramaswamy (2020) Singapore | Phenomenological inquiry | Home | Size: 25 | Interview study | Participants’ experience of living with advanced cancer. | 6,5/10 |
Diagnosis: Cancer | ||||||
Age: 58–76 | ||||||
Female: 54.5% | ||||||
Lee Mortensen et al. (2018) 54 Denmark | Generic qualitative study | Hospital | Size: 18 | Focus group study | Health-related quality of life and support needs. | 9,5/10 |
Diagnosis: Cancer | ||||||
Age: 41–72 | ||||||
Female: 100% | ||||||
Ross and Austin (2015) 55 United Kingdom | Generic qualitative study | Hospital | Size: 16 | Interview study | Spiritual needs and spiritual support preferences and guidelines. | 9/10 |
Diagnosis: Cardio | ||||||
Age: 60–84 | ||||||
Female: 43.8% | ||||||
Hatamipour et al. (2015) 56 Iran | Generic qualitative study | Hospital | Size: 18 | Interview study | Spiritual needs. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 22–72 | ||||||
Female: 50% | ||||||
O’Connor (2014) 57 Australia | Generic qualitative study | Home and hospice | Size: 8 | Interview study | Experiences. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 56–86 | ||||||
Female: 50% | ||||||
Schroedl et al. (2014) 58 United States | Generic qualitative study | Hospital | Size: 20 | Interview study | Unmet healthcare needs. | 8/10 |
Diagnosis: COPD | ||||||
Age: 52–83 | ||||||
Female: 55% | ||||||
Simha et al. (2013) 59 India | Generic qualitative study | Hospice | Size: 10 | Interview study | Spiritual concerns. | 8,5/10 |
Diagnosis: Cancer | ||||||
Age: 38–70 | ||||||
Female: 70% | ||||||
Bajwah et al. (2013) 60 United Kingdom | Generic qualitative study | Hospital | Size: 8 | Interview study | Palliative care needs. | 10/10 |
Diagnosis: Lung disease | ||||||
Age: 56–81 | ||||||
Female: 37.5% | ||||||
Elsner et al. (2012) 61 India | Generic qualitative study | Palliative Care Clinic | Size: 37 | Interview study | Psychosocial and spiritual problems. | 9/10 |
Diagnosis: Cancer, kidney | ||||||
Age: 56.5 | ||||||
Female: 59.5% | ||||||
Dehghan et al. (2012) 62 United Kingdom | Generic qualitative study | Hospital | Size: 3 | Interview study | Palliative care needs and care experiences. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 20–52 | ||||||
Female: 66.7% | ||||||
Qualitative studies | ||||||
Author/year/country | Study type | Setting | Sample | Method of data collection | Outcome | Quality out of max. 10 c |
Chang et al. (2012) 63 United States | Generic qualitative study | Hospital | Size: 17 | Interview study | Spiritual needs. | 8,5/10 |
Diagnosis: NR | ||||||
Age: 58–94 | ||||||
Female: 0% | ||||||
Volker and Wu (2011) 64 United States | Generic qualitative study | Urban and rural site | Size: 20 | Interview study | The meaning of control and control preferences. | 9/10 |
Disease: Cancer | ||||||
Age: 34–87 | ||||||
Female: 50% | ||||||
Strohbuecker et al. (2011) 65 Germany | Generic qualitative study | Nursing home | Size: 9 | Interview study | Palliative care needs. | 9/10 |
Diagnosis: chronic | ||||||
Age: 70–100 | ||||||
Female: 77.8% | ||||||
Hsiao et al. (2011) 66 Taiwan | Generic qualitative study | Hospital | Size: 33 | Interview study | Spiritual needs. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 51.92 (SD 10.2) | ||||||
Female: 48% | ||||||
Nixon and Narayanasamy (2010) 67 United Kingdom | Generic qualitative study | Outpatient clinic | Size: 21 | Questionnaire study | Spiritual needs. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 18–69 | ||||||
Female: 50% | ||||||
Shih et al. (2009) 68 Taiwan | Generic qualitative study | Hospital | Size: 35 | Interview study | Constitutive patterns, spiritual needs, and professional actions. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 75.36 (SD 3.41) | ||||||
Female: 46% | ||||||
Wijk and Grimby (2008) 69 Sweden | Generic qualitative study | Hospital | Size: 30 | Interview study | Needs at the end of life. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 79 | ||||||
Female: 50% | ||||||
Shah et al. (2008) 70 United States | Generic qualitative study | Hospital | Size: 226 | Content analysis | Concerns. | 8,5/10 |
Diagnosis: multiple | ||||||
Age: 65.08 (SD 14.73) | ||||||
Female: 50% | ||||||
Aoun et al. (2008) 71 Australia | Generic qualitative study | Home | Size: 11 | Interview study | Supportive care needs. | 9/10 |
Diagnosis: Cancer | ||||||
Age: 73.6 (SD 11.5) | ||||||
Female: 72.7% | ||||||
Mixed methods studies | ||||||
Author/year/country | Study type | Setting | Sample | Method of data collection | Outcome | Quality out of max. 10 and 8 d |
Egan et al. (2017) 72 New Zealand | Mixed methods | Hospice/hospital | Interview/Survey a | Interviews and The Spirituality in New Zealand Hospice/Palliative Care Survey | Spiritual beliefs, practices, and needs. | 8/10 and 7/8 |
Size: 24/141 | ||||||
Disease: Cancer | ||||||
Age: ?e/67 (SD 10) | ||||||
Female: ?/55% | ||||||
Quantitative studies | ||||||
Author/year/country | Study type | Setting | Sample | Instrument for of data collection | Outcome | Quality out of max. 8 c |
Yun et al. (2018) 73 South Korea | Cross-sectional study | Hospital | Size: 1001 | Purposeful created instrument | Components of a good death. | 7,5/8 |
Disease: Cancer | ||||||
Age: <40–>50 | ||||||
Female: 60.9% | ||||||
Astrow et al. (2018) 74 United States | Observational study | Outpatient site | Size: 727 | The Spiritual Needs Assessment for Patients (SNAP) | The dimension of spiritual need. | 8/8 |
Disease: Cancer | ||||||
Age: 59 (SD 16.8) | ||||||
Female: 67.8% | ||||||
Delgado-Guay et al. (2016) 75 United States | Randomized controlled trial | Palliative Care Unit | Size: 100 | Purposefully created Go Wish card game List of wishes/statements | Wishes at the end of life. | 7/8 |
Disease: Cancer | ||||||
Age: 27–83 | ||||||
Female: 60% | ||||||
Uitdehaag et al. (2015) 76 The Netherlands | Cross-sectional study | Outpatient clinic | Size: 56 | Problems and Needs in Palliative Care questionnaire (PNPC) 77 , EORTC-QLQ-OES1878,79 and EORTC QLQ-PAN26 80 | Problems and needs. | 7/8 |
Disease: Cancer | ||||||
Age: 65 (SD 11.8) | ||||||
Female: 21.1 % | ||||||
Effendy et al. (2015) 81 The Netherlands/Indonesia | Cross-sectional study | Hospital | Indonesia/Netherlands b | The Problems and Needs in Palliative Care questionnaire (PNPC) 77 | Problems and unmet needs. | 8/8 |
Size: 180/94 | ||||||
Disease: Cancer | ||||||
Age: 21–77/30–87 | ||||||
Female: 73.9%/70.2% | ||||||
Dedeli et al. (2015) 82 Turkey | Cross-sectional study | Hospital | Size: 230 | Purposefully created instrument and Turkish adaptation of Patients Spiritual Needs Assessment Scale (PSNAS) 83 | Spiritual needs. | 8/8 |
Disease: Cancer | ||||||
Age: 55.3 (SD 15.8) | ||||||
Female: 52.2% | ||||||
Vilalta et al. (2014) 84 Spain | Observational study | Palliative Care Unit | Size: 50 | Purposefully created questionnaire | Spiritual Needs. | 7,5/8 |
Disease: Cancer | ||||||
Age: 48% > 60 | ||||||
Female: 38% | ||||||
Quantitative studies | ||||||
Author/year/country | Study type | Setting | Sample | Instrument for of data collection | Outcome | Quality out of max. 8 c |
Höcker et al. (2014) 85 Germany | Cross-sectional study | Radiation clinic | Size: 285 | Spiritual Needs Questionnaire (SpNQ) 86 | Spiritual needs. | 8/8 |
Disease: Cancer | ||||||
Age: 18–83 | ||||||
Female: 49.8 | ||||||
Pearce et al. (2012) 87 United States | Cross-sectional study | Oncology unit | Size: 143 | Adaptation of Functional Assessment of Chronic Illness Therapy – Spiritual Wellbeing Scale (FACIT-Sp) 88 | Unmet spiritual care needs. | 8/8 |
Disease: Cancer | ||||||
Age: 58.6 (SD 14.2) | ||||||
Female: 49.3% | ||||||
Fitch (2012) 89 Canada | Cross-sectional study | Radiation clinic | Size: 69 | Adaptation of Supportive Care Needs Survey — Radiation (SCNS-R) 90 | Supportive care needs. | 7,5/8 |
Disease: Cancer | ||||||
Age: 65 (35–84) | ||||||
Female: 49.3% | ||||||
Ugalde et al. (2011) 91 Australia | Cross-sectional study | Hospital | Size: 108 | Needs Assessment for Advanced Lung Cancer Patients (NA-ALCP) 92 | Unmet needs. | 7/8 |
Disease: Cancer | ||||||
Age: 39–83 | ||||||
Female: 40% | ||||||
Ben Natan et al. (2010) 93 Israel | Cross-sectional study | Geriatric center | Size: 73 | Purposefully created questionnaire | End-of-life needs. | 6,5/8 |
Disease: ? | ||||||
Age: ? | ||||||
Female: 66.6% | ||||||
Rainbird et al. (2009) 94 Australia | Cross-sectional study | Hospital | Size: 246 | Needs Assessment for Advanced Cancer Patients questionnaire (NA-ACP) 95 | Unmet needs. | 6.5/8 |
Disease: Cancer | ||||||
Age: 61 (SD 11.9) | ||||||
Female: 53% | ||||||
Cheng et al. (2008) 96 Taiwan | Cross-sectional study | Palliative care unit | Size: 366 | The good death scale 97 and the audit scale for good death services 98 | Factors related to a good death. | 6,5/8 |
Disease: Cancer | ||||||
Age: 65 (SD 16.49) | ||||||
Female: 50% |
This mixed-methods study presents results on two studies separately – for example, populations are also presented separately.
Cross-sectional data were compared for two populations and presented separately.
The quality of the qualitative and quantitative arms of this mixed-methods has been assessed separately.
When a variable is unknown, this is presented as “?”.