1 |
United Kingdom |
Supports patients attending ICU recovery clinic on a weekly basis. They support the running of a “café area” and provide informal support for patients and caregivers. Roles can be filled by either a patient or caregiver |
Hospital clinic setting |
Staff engagement events |
Attendance at patient and staff days. Involved in publicly speaking to the audiences about ICU experience and recovery |
2 |
United Kingdom |
Patient representative on national ICU professional network |
Attendance at committee meetings. |
Supports the running of in person support groups |
Participation in online platforms |
Delivery of sessions to staff about ICU patient experiences |
3 |
United Kingdom |
Attendance at patient and staff days. Involved in publicly speaking to the audiences about ICU experience and recovery |
In hospital setting |
Staff engagement events |
Attendance at “hospitalwide meetings” to speak to wider healthcare community about ICU experiences and recovery |
4 |
United States |
Supports patients and family members in the ICU. In conjunction with social worker, helps in identifying patients for ICU Recovery Clinic. Involved in publicly speaking to clinical and lay audiences about ICU experience and recovery. Created mobile app to help with ICU patient communication |
Inhospital setting |
Independent developer/consultant |
Attendance at committee meetings |
5 |
United States |
Supports the running of in person support groups |
Inhospital setting |
Supports patients and family members in the ICU |
6 |
United States |
Supports patients and family members in the ICU Recovery Clinic and support groups. Involved in public speaking to clinical audiences about ICU experience and recovery. Reviewer of clinical grant applications for ICU research |
Hospital clinic setting |
7 |
Australia |
Involved in public speaking to clinical audiences about ICU experience and recovery such as hospital-based quality improvement forums and statewide research conferences. Reviewer of clinical grant applications and articles for ICU research. Involvement in codesign activities |
Staff engagement events |