TABLE 5.
Students’ self-assessment of their knowledge about RDs, split faculty.
| N (%) |
|||
| Nursing students | Physiotherapy students | Medical students | |
| How would you rate your knowledge about rare diseases? | |||
| Very good | 4 (3.5) | 0 | 0 |
| Fair enough | 2 (1.8) | 9 (5.2) | 18 (4.9) |
| Insufficient | 46 (40.7) | 97 (56.1) | 207 (56.2) |
| Very poor | 61 (54) | 67 (38.7) | 143 (38.9) |
| Do you feel prepared for caring for a patient with a rare disease? | |||
| Definitely | 0 | 2 (1.2) | 1 (0.3) |
| Rather yes | 3 (2.7) | 17 (9.8) | 17 (4.6) |
| Rather not | 51 (45.1) | 95 (54.9) | 152 (41.6) |
| Definitely not | 44 (38.9) | 50 (28.9) | 185 (50.3) |
| I do not know | 15 (13.3) | 9 (5.2) | 13 (3.2) |
| Would you like to broaden your knowledge about rare diseases? | |||
| Yes | 94 (83.2) | 147 (85) | 272 (73.9) |
| No | 3 (2.7) | 14 (8.1) | 44 (12) |
| I do not know | 16 (14.2) | 12 (6.9) | 52 (14.1) |
| Do you think that there should be a mandatory course on rare diseases in medical curricula? | |||
| Definitely yes | 26 (23) | 55 (31.8) | 23 (6.2) |
| Rather yes | 60 (53.1) | 97 (56.1) | 145 (39.4) |
| Rather not | 12 (10.6) | 16 (9.2) | 142 (38.6) |
| Definitely not | 2 (1.8) | 0 | 28 (7.6) |
| I do not know | 13 (11.5) | 5 (2.9) | 30 (8.2) |
| Did you/do you have any classes about rare diseases during your studies? | |||
| Yes | 36 (31.9) | 89 (51.5) | 282 (76.6) |
| No | 60 (53.1) | 76 (43.9) | 63 (17.1) |
| I do not know | 17 (15) | 8 (4.6) | 23 (6.3) |
| Where do you/did you get your knowledge about RDs from? | |||
| Mandatory courses at the university | 12 (10.6) | 56 (32.4) | 188 (51.1) |
| Facultative courses at the university | 9 (8) | 20 (11.6) | 82 (22.3) |
| Scientific literature and research | 15 (13.3) | 16 (9.3) | 72 (19.6) |
| Scientific conferences, symposia | 7 (6.2) | 10 (5.8) | 36 (9.8) |
| Internet | 62 (54.9) | 92 (53.2) | 216 (58.7) |
| Other | 3 (2.7) | 2 (1.2) | 9 (2.5) |
| I do not search for such information | 27 (23.9) | 30 (17.3) | 42 (11.4) |