Table 4.

Overview of the representation of data from each included paper in the themes.

Authors and year of publication	Themes
	Health consequences for the patient	Health consequences for the family members	Consequences for the relations within the family	Consequence for the providing of care
Anneser et al. 2020				X
Bembich et al., 2020		X	X
Creutzfeldt et al., 2020		X		X
Heat et al. 2020		X	X
Mahoney et al. 2020			X	X
Mercadante et al., 2020		X		X
Muniraman et al., 2020		X	X	X
O'Caoimh et al. 2020	X	X
Ostacoli et al., 2020	X
Piscatello et al. 2020				X
Shum et al., 2020	X			X
Sizoo et al., 2020	X	X
Verbeek et al., 2020	X		X	X
Virani et al., 2020	X		X	X
Wammes et al., 2020	X	X	X
Yeh et al. 2020				X
Zeh et al., 2020	X	X