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. 2021 May 7;39(7):823–833. doi: 10.1007/s40273-021-01018-5

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© The Author(s) 2021

Open AccessThis article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/.

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Fig. 3 — Variables of interest to patient involvement in modeling. The variables of interest relevant to patient involvement in modeling are represented in distinct bubbles: goals, procedures, modeler characteristics, patient characteristics, participators, and patient role. Goals are detailed in three bubbles (diversity; representation; target model user). Procedures are detailed in five bubbles (target projects for involvement; guidelines; timelines; methods of engagement; recruitment procedures). Modeler characteristics are detailed in five bubbles (belief in patient involvement; experience with patients; assumptions; openness to change; communication strategies). Patient characteristics are detailed in three bubbles (capabilities; training; perspectives). Participators are detailed in five bubbles (number of patients; identity of patients; number of other stakeholders; identity of other stakeholders; power dynamics). Patient role is detailed in two bubbles (which decisions patients involved in; how much influence patients have)