Table 2.

Clinical assessments in DMD patients at baseline and 12 months follow‐up

DMD patients	Baseline (n = 17)	12 months follow‐up (n = 13)	P value
Pinch strength (kg)	2.857 (2.137–4.010)	2.243 (1.930–3.339)	<0.001*
Grip strength, kg	8.47 (5.25–11.08)	6.39 (4.92–9.93)	0.016
PUL 2.0 total score, points (max 42)	29 (20–36)	23 (17–30)	<0.001*
PUL 2.0 shoulder score, points (max 12)	4 (0–8)	1 (0–6)	0.109
PUL 2.0 elbow score, points (max 17)	13 (10–16)	11 (7–14)	0.001*
PUL 2.0 distal score, points (max 13)	11 (10–12)	11 (10–12)	0.227
PROM total score, points (max 64)	49 (36–57)	44 (30–54)	0.041
NRS tiring, points (max 10)	0 (0–1) n = 15	1 (0–4) n = 9	0.250
NRS difficult, points (max 10)	0 (0–2) n = 15	0 (0–1) n = 9	1.000

Values are median (first‐third quartiles). Statistical significance was set at P < 0.05. Uncorrected P values are reported and statistical significance after Bonferroni–Holm correction is shown by *. If a certain value was not available for all patient, the number of patients for whom the data were available was presented after the result with n = number.

DMD, Duchenne muscular dystrophy; NRS, numeric rating scale; PROM, patient reported outcome measure; PUL, performance of the upper limb.