Table 2.
Uptake of SHARING Choices by Enrolled Participants by System and in Total
| System A | System B | Combined | |
|---|---|---|---|
| Prior to Enrollment a,b | (n=17) | (n=20) | (n=37) |
| Dyad recalled received mailed introductory materials | 14 (82.4) | 14 (70.0) | 28 (75.7) |
| Dyad brought introductory materials to visit | 11 (64.7) | 8 (40.0) | 19 (51.4) |
| Advance Care Planning c | (n=20) | (n=20) | (n=40) |
| Completion of ACP conversations | |||
| 1+ conversation completed | 13 (65.0) | 6 (30.0) | 19 (47.5) |
| Not interested | 6 (30.0) | 12 (60.0) | 18 (45.0) |
| Dropped/Withdraw | 1 (5.0) | 2 (10.0) | 3 (7.5) |
| Location of ACP conversations | |||
| Primary care clinic | 14 (100.0) | 1 (16.7) | 15 (75.0) |
| Community | 0 (0.0) | 5 (83.3) | 5 (25.0) |
| Duration of ACP conversations | |||
| Less than 30 minutes | 1 (7.1) | 0 (0.0) | 1 (5.0) |
| 30–45 minutes | 6 (42.9) | 1 (16.7) | 7 (18.0) |
| 45 minutes or longer | 7 (50.0) | 5 (83.3) | 12 (30.0) |
| Health Care Agent Identified | 13 (100.0) | 6 (100.0) | 19 (100.0) |
| Living Will Completed | 7 (53.8) | 1 (16.7) | 8 (42.1) |
| Total ACP facilitator contacts (Range per dyad) | 60 (1–7) | 51 (1–6) | 111 (1–7) |
| Patient/Family Reports at 6 Weeks d | (n=19) | (n=18) | (n=37) |
| Patient-Family Agenda Setting | |||
| Used | 10 (52.6) | 7 (38.9) | 17 (45.9) |
| Not used | 6 (31.6) | 10 (55.6) | 16 (43.2) |
| Do not remember | 3 (15.8) | 1 (5.6) | 4 (10.8) |
| Shared Access to Patient Portal | |||
| Registered | 8 (42.1) | 5 (27.8) | 13 (35.1) |
| Intend to register | 4 (21.1) | 6 (33.3) | 10 (27.0) |
| Not interested | 7 (36.8) | 6 (33.3) | 13 (35.1) |
| Completed previously/Do not remember | 0 (0.0) | 1 (5.6) | 1 (2.7) |
| Advance Directive | |||
| Completed new advance directive | 4 (21.1) | 8 (44.4) | 12 (32.4) |
| Intend to complete | 0 (0.0) | 1 (5.6) | 1 (2.7) |
| Not interested | 1 (5.3) | 3 (16.7) | 4 (10.8) |
| Previously completed | 12 (63.2) | 4 (22.2) | 16 (43.2) |
| Do not remember | 2 (10.5) | 2 (11.1) | 4 (10.8) |
| Any of Above | 12 (63.1) | 11 (61.1) | 23 (62.1) |
a
Information reported by research staff at time of enrollment visit.
b
Delivery characteristics were not recorded for the first 3 dyads at Health System A.
c
Information reported by facilitator for participants with 1+ ACP conversation; 1 dyad at Health System A had 2 conversations.
d
Uptake of intervention components at 6 weeks refers to a composite measure for each dyad that relies on family responses for patients who were unable to report or when reports were inconsistent.