Table 3.
Coding Results: Factors Influencing POAAGG Genetic Study Participation
Category | Code | Sub-Code | Dimension Mentioned in Interview | Sum* (freq.) |
---|---|---|---|---|
Anticipated outcomes | Benefit to self | Personal benefits of study participation, including improving or maintaining personal health, learning about glaucoma, free and/or convenient access to glaucoma specialists, and compensation | 46 (92%) | |
Unhappy with current provider | Dissatisfaction with current eyecare provider; mentions of seeking new provider | 6 (12%) | ||
Accessibility | Program efforts that facilitated study participation, including assistance with transportation, expedited appointment booking, wheelchair and walker accessibility, no charge for appointment, and/or hosting local screening outreach event | 11 (22%) | ||
Compensation | Compensation for study participation or lunch provided during appointment or outreach event | 8 (16%) | ||
Desire to improve glaucoma care and treatment options for others through study participation | 25 (50%) | |||
Personal factors | Family history | Family members diagnosed with glaucoma or at risk of glaucoma | 12 (24%) | |
Normative influences | Prior conversation | Family member or friend encouraging participation; Learning of study from other participants | 8 (16%) | |
WURD | Learning about study from WURD | 32 (64%) | ||
Reservations | Any reservation | Concern about participating in genetic research due to history of exploitation of Black people in research | 17 (34%) | |
Reservations of others (only) | General concern of others in the Black community, but not explicitly for self | 8 (16%) | ||
Personal reservations | Concerns for self | 9 (18%) |
Total number of interview transcripts (n=50; 1/ respondent) coded “true” for relevant code. Categories are not mutually exclusive.