Table 2.
Demographic details of focus group and interview participants
| Participant | Gender | Age in years | Diagnosis | Years since diagnosis | Diagnosis confirmed by endoscopy Y = Yes U = Unsure |
Symptom rating 1 = Not at all troublesome 2 = Quite troublesome 3 = Very troublesome |
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|---|---|---|---|---|---|---|---|---|---|---|
| Pain | Fatigue | Urgency | ||||||||
| Focus groups | ||||||||||
| 1 | F | 26 | CD | 2 | Y | 2 | 3 | 2 | ||
| 2 | M | 53 | CD | 3 | Y | 2 | 2 | 3 | ||
| 3 | F | 28 | CD | 6 | Y | 2 | 3 | 2 | ||
| 4 | F | 46 | CD | 7 | Y | 2 | 3 | 2 | ||
| 5 | F | 23 | CD | 12 | Y | 2 | 3 | 1 | ||
| 6 | M | 60 | CD | 12 | Y | 3 | 3 | 2 | ||
| 7 | F | 26 | CD | 13 | Y | 2 | 3 | 2 | ||
| 8 | M | 34 | CD | 18 | Y | 2 | 2 | 1 | ||
| 9 | M | 54 | CD | 21 | Y | 2 | 2 | 1 | ||
| 10 | M | 43 | CD | 27 | Y | 3 | 3 | 3 | ||
| 11 | F | 31 | IBD-U | 3 | Y | 3 | 2 | 3 | ||
| 12 | F | 23 | IBD-U | 7 | Y | 3 | 3 | 3 | ||
| 13 | M | 28 | UC | 3 | Y | 2 | 2 | 3 | ||
| 14 | F | 30 | UC | 3 | Y | 2 | 3 | 3 | ||
| 15 | F | 32 | UC | 3 | Y | 2 | 3 | 3 | ||
| 16 | M | 30 | UC | 4 | Y | 3 | 3 | 3 | ||
| 17 | F | 21 | UC | 6 | Y | 1 | 3 | 2 | ||
| 18 | M | 29 | UC | 7 | Y | 2 | 2 | 3 | ||
| 19 | M | 31 | UC | 11 | Y | 3 | 3 | 1 | ||
| 20 | F | 32 | UC | 11 | Y | 1 | 1 | 1 | ||
| 21 | F | 25 | UC | 12 | U | 3 | 3 | 3 | ||
| 22 | F | 57 | UC | 16 | Y | 1 | 3 | 3 | ||
| 23 | M | 47 | UC | 20 | Y | 3 | 3 | 3 | ||
| 24 | M | 40 | UC | 27 | Y | 1 | 3 | 1 | ||
| 25 | F | 58 | UC | 31 | Y | 3 | 3 | 3 | ||
| 26 | F | * | UC | 40 | Y | 3 | 3 | 3 | ||
| Interviews | ||||||||||
| 1 | F | 27 | CD | 13 | Y | * | * | * | ||
| 2 | M | 40 | CD | 22 | Y | 2 | 2 | 2 | ||
| 3 | F | 41 | CD | 17 | Y | 3 | 2 | 1 | ||
| 4 | F | 33 | CD | 26 | Y | 2 | 1 | 1 | ||
| 5 | M | 41 | UC | 15 | Y | 0 | 0 | 0 | ||
| 6 | M | 31 | CD | 9 | Y | 2 | 1 | 1 | ||
| 7 | M | * | CD | * | Y | * | * | * | ||
| 8 | F | 35 | UC | 14 | Y | 0 | 0 | 0 | ||
| 9 | F | 62 | CD | 48 | Y | 3 | 2 | ** | ||
| 10 | M | 35 | CD | 20 | Y | 1 | 1 | 1 | ||
| 11 | M | 54 | UC | 27 | Y | 1 | 1 | 1 | ||
| 12 | M | 55 | CD | 28 | Y | 3 | 1 | 3 | ||
| 13 | F | 52 | CD | 5 | Y | 2 | 1 | 1 | ||
| 14 | F | * | CD | * | Y | * | * | * | ||
|
Range 21–62 Mean 38 years |
Range 2–48 Mean 14.9 years |
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*Data not provided by participant
**Ileostomy