Table 2.
Time point | Time after discharge | Measurement tools administered |
T1 (baseline) data collection | 1–4 days | AQoL-8D*, CGI, PCS, FACQ, SAS, BADLI, demographic data |
Intervention group only: FECH+ nurse contacts 1–4: 1 week, 2 weeks, 1 month, 2 months after discharge. | ||
T2 data collection | 3 months | AQoL-8D, PCS, FACQ, SAS, BADLI |
Intervention group only: FECH+ nurse contacts 5–6: 4 months, 6 months after discharge. | ||
T3 data collection | 6 months | AQoL-8D, CGI, PCS, FACQ, SAS, BADLI, qualitative interview (subset) |
T4 data collection | 12 months | AQoL-8D, CGI, PCS, FACQ, SAS, BADLI, qualitative interview (subset) |
*AQoL-8D measures health-related quality of life36.
AQoL-8D, Assessment of Quality of Life—eight dimensions; BADLI, Barthel Activities of Daily Living Index; CGI, Caregiver Inventory; FACQ, Family Appraisal of Caregiving Questionnaire-palliative care; FECH+, Further Enabling Care at Home; PCS, Preparedness for Caregiving Scale; SAS, Symptom Assessment Scale.