Table 2.
Top 5 “Very Important” Priorities by Stakeholder Group
| PLWD (n = 23) |
Caregiver (n = 101) |
HCP (n = 62) |
|||
|---|---|---|---|---|---|
| Priority | % | Priority | % | Priority | % |
| Services and supports that are needed to help people living with dementia continue living in their own homes. | 91.3 | Understand the benefits of cognitive stimulation activities such as games and crosswords in delaying the onset or slowing the progression of dementia. | 76.3 | Information and resources needed to help individuals and their families following a diagnosis of dementia. | 78.6 |
| Understand how to respect individual choices regarding quality of life versus prolonging life. | 82.6 | Effective approaches apart from medication to manage behavioral symptoms. | 74.7 | How a diagnosis of dementia affects the relationships between a person living with dementia and their families. | 72.7 |
| Identify ways to support people living with dementia and their families to make advance care plans early in the diagnosis. | 78.3 | Information and resources needed to help individuals and their families following a diagnosis of dementia. | 74.2 | How an early diagnosis benefits the person with the diagnosis and their family. | 71.4 |
| Identify the skills and knowledge that the healthcare team needs to provide better care for people living with dementia and their families. | 78.3 | Identify the care and support services that are needed to support the dignity of people living with dementia. | 73.6 | How the process of receiving a diagnosis of dementia can be more personalized for the individual and the family. | 70.9 |
| Information and resources needed to help individuals and their families following a diagnosis of dementia. | 73.9 | Services and supports that are needed to help people living with dementia continue living in their own homes. | 72.0 | Identify how to support people living with dementia and their families who are vulnerable and at higher risk for poor health outcomes. | 70.6 |
| How an early diagnosis benefits the person with the diagnosis and their family. | 73.9 | – | |||
| How to manage anxiety, fear, and other emotions related to a diagnosis of dementia. | 73.9 | ||||
| Ways to support communication and decisions about medications and care among people living with dementia, their families, and health care providers. | 73.9 | ||||
| Ways to support people living with dementia who are unable to make decisions about their health and care. | 73.9 | – | |||
Overlapping priorities among groups are bolded
PLWD Person Living with Dementia), HCP health and social care professionals, researchers, other