Table 4.
Comparison of Top Priorities of PLWD with Rating as “Very Important” by Other Stakeholders
| Priority Research Topic | PLWD (n = 23) Percentage |
Caregiver (n = 101) Percentage |
HCP (n = 62) Percentage |
p-value from Fisher’s Exact Test |
|---|---|---|---|---|
| Services and supports that are needed to help people living with dementia continue living in their own homes. | 91.3 | 72.0 | 66.7 | 0.07 |
| Understand how to respect individual choices regarding quality of life versus prolonging life. | 82.6 | 61.1 | 66.0 | 0.37 |
| Identify the skills and knowledge that the healthcare team needs to provide better care for people living with dementia and their families. | 78.3 | 65.2 | 62.8 | 0.74 |
| Identify ways to support people living with dementia and their families to make advance care plans early in the diagnosis. | 78.3 | 62.0 | 48.0 | 0.12 |
| Information and resources needed to help individuals and their families following a diagnosis of dementia. | 73.9 | 74.2 | 78.6 | 0.88 |
| How an early diagnosis benefits the person with the diagnosis and their family. | 73.9 | 66.0 | 71.4 | 0.66 |
| How to manage anxiety, fear, and other emotions related to a diagnosis of dementia. | 73.9 | 58.3 | 69.1 | 0.25 |
| Ways to support communication and decisions about medications and care among people living with dementia, their families, and health care providers. | 73.9 | 58.1 | 52.9 | 0.31 |
| Ways to support people living with dementia who are unable to make decisions about their health and care. | 73.9 | 53.8 | 56.9 | 0.04 |
Bolded text represents research topics among top priorities for PLWD and at least 1 other stakeholder group
PLWD Person Living with Dementia, HCP health and social care professionals, researchers, other