Table 4. Explanations and examples for common sources of disagreement.
Explanation of disagreement | Example sentence |
---|---|
Use of “may” which could indicate either possibility or allowability of some action | A. I/my child/my fetus (circle one) will be tested for genetic indicators that may be linked to the following genetic disease or condition (insert general description of disease/condition). B. This may include performing exams under anesthesia that are relevant to my procedures. |
Broad statements of agreement to all form content | I have read and agree to the contents of this form. |
Statements of understanding or necessity rather than new allowability | I understand that blood and urine specimens will need to be collected to determine my care. |
Statements of allowable actions in the second person as opposed to first person | You are allowing the clinic to use this material for quality control purposes before being discarded in accordance with normal laboratory procedures and applicable laws. |
Statements of unwanted or irrelevant actions, which may or may not be forbidden | A. I do not wish medical care of any kind except emergency care to be provided. B. Transfusion is not applicable to my operation |
Tiered consent, when annotators may markup text differently (e.g., stem only, stem + options, options only, etc.) |
The following text includes four consecutive parsed sentences for tiered consent: sentence stem, first option, description of first option, second option.
1. In the event the patient dies prior to use of all the embryos, we agree that the embryos should be disposed of in the following manner (check only one box): 2. Award to patient s [sic] spouse or partner, which gives complete control for any purpose, including implantation, donation for research, or destruction. 3. This may entail maintaining the embryos in storage, and the fees and other payments due the clinic for these cryopreservation services. 4. Award for research purposes, including but not limited to embryonic stem cell research, which may result in the destruction of the embryos but will not result in the birth of a child. |