Total responses |
1218 |
Complete responses |
964 |
Gender |
Male |
254 (26.4) |
Female |
707 (73.4) |
Trans male |
1 (0.1) |
Trans female |
0 (0.0) |
Other |
1 (0.1) |
Age |
16–24 |
2 (0.2) |
25–35 |
25 (2.6) |
36–45 |
104 (10.8) |
46–59 |
299 (31.0) |
60–69 |
322 (33.4) |
70–75 |
136 (14.1) |
76 or older |
76 (7.9) |
Ethnicity |
White—English, Welsh, Scottish, Northern Irish, or British |
816 (84.7) |
White—Irish |
38 (4.0) |
White—any other |
71 (7.3) |
Mixed or multiple ethnic groups—White and Black African |
2 (0.2) |
Mixed or multiple ethnic groups—White and Asian |
2 (0.2) |
Mixed or multiple ethnic groups—any other |
2 (0.2) |
Asian or Asian British—Indian |
3 (0.3) |
Asian or Asian British—Pakistani |
1 (0.1) |
Asian or Asian British—Chinese |
2 (0.2) |
Asian or Asian British—any other |
7 (0.7) |
Black, African, Caribbean, or Black British—African |
4 (0.4) |
Black, African, Caribbean, or Black British—Caribbean |
6 (0.6) |
Black, African, Caribbean, or Black British—any other |
1 (0.1) |
Other ethnic group—any other |
6 (0.6) |
Prefer not to answer |
2 (0.2) |
Country |
England |
764 (79.2) |
Scotland |
68 (7.0) |
Wales |
33 (3.4) |
Northern Ireland |
12 (1.2) |
Republic of Ireland |
16 (1.7) |
Other |
54 (5.6) |
Prefer not to answer |
17 (1.8) |
Diagnosis |
Polycythaemia vera (PV) |
270 (28.0) |
Essential thrombocythemia (ET) |
548 (56.9) |
Primary myelofibrosis (MF) |
42 (4.4) |
Post-ET myelofibrosis |
39 (4.0) |
Post-PV myelofibrosis |
29 (3.0) |
Prefibrotic myelofibrosis |
7 (0.7) |
MPN—unclassified |
16 (1.7) |
Other |
13 (1.4) |
Current treatment |
Observation |
134 (15.2) |
Venesection |
111 (12.6) |
Hydroxycarbamide |
437 (49.7) |
Interferon |
23 (2.6) |
Pegylated interferon A |
101 (11.5) |
Anagrelide |
26 (3.0) |
Ruxolitinib |
83 (4.4) |
Busulfan |
2 (0.2) |
Other |
103 (11.7) |
Vaccine received |
AstraZeneca (ChAdOx1-S [recombinant]) |
457 (51.8) |
Pfizer/BioNTech (BNT162b2) |
414 (46.9) |
Moderna (mRNA-1273) |
10 (1.1) |
Johnson & Johnson (JNJ-78436735) |
1 (0.1) |