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. 2021 Jan 25;66(7):671–679. doi: 10.1038/s10038-020-00894-7

Table 2.

Maternal attitudes and concerns toward genetic analysis in JECS

Response rate (%)
Agree Unsure Disagree
Benefit of genetic analysis
  Genetic analysis on children and parents is beneficial 74.3 21.5 4.1
Data sharing
  Anonymous genetic information is better to be shared with other medical studies 68.3 25.6 6.1
Not concerned (disagree) Unsure Concerned (agree)
Concern about the security of genetic information
  I have a concern about the secure management of genetic information to avoid leakage 35.9 37.7 26.4
Concern about the secondary use of genetic information
  I have a concern that genetic information may be provided to other institutions without notice 33.4 35.9 30.8
High (agree) Medium Low (disagree)
Trust level in research institutions
  The credibility of research institutions is one of my motivation to participation in the study 61.9 33.4 4.7
Agree Unsure Disagree
Preference for receiving results
  I want to know the results of genetic analysis 89.3 8.7 2.0