Table 1.
Overview of screening action plan, risk communication & follow-up procedures by estimated risk level.
Risk Level | Risk Communication a | Screening Action Plan | Follow-Up |
---|---|---|---|
Average 10-year absolute risk equivalent to lifetime risk of <15% | Risk Letter: includes risk level and range | 40–49 years: No regular screening with a mammogram |
Phone call with study genetic counsellor or nurse available upon request |
Average risk: “In this risk level, up to <number> out of 1000 women your age may get breast cancer over the next 10 years”. | 50–69 years: Screened every 2 years with a mammogram |
Follow-up with questionnaire at time of risk communication and 1 year later. | |
Higher than Average 10-year absolute risk equivalent to lifetime risk of 15 to <25% | Risk Letter: includes risk level and range | Ontario 40–49 years: Talk to primary care provider about screening with a mammogram every year. |
Phone call with study genetic counsellor or nurse available upon request |
Higher than Average risk: “In this risk level, about <number> to <number> out of 1000 women your age may get breast cancer over the next 10 years”. | 50–69 years: Screened every year with a mammogram |
Follow-up with questionnaire at time of risk communication and 1 year later. | |
Québec Screened every 1–2 years with a mammogram, ultrasound considered if breast density is >75% | |||
High 10-year absolute risk equivalent to lifetime risk of ≥25% | Risk Letter: includes risk level and range | 40–69 years: Screened every year with a mammogram and magnetic resonance imaging (MRI) |
Phone call with study genetic counsellor or nurse |
High risk: “In this risk level, <number> or more out of 1000 women your age may get breast cancer over the next 10 years”. | Follow-up with questionnaire at time of risk communication and 1 year later. |
a Women are encouraged to discuss their risk level and screening action plan with their primary care provider. In Quebec, the risk letter is also sent to the family physician. Additional materials supporting risk communication for both women and their primary care provider include: A booklet/Information sheet on Understanding your Assessment, the study Website also includes information to support understanding your risk assessment as well as many other resources (e.g., frequently asked questions).